Indiana Pouch People

[Ant]

I need help, I am trying for SS and i need to know all the problems and complications you have all had.

Thank you this will be very helpful.

[10french]

I have kidney infections 100% of the time. This is mainly due to reflux of urine from the new bladder to my kidneys. I haven't had a clear urine test since I had the surgery in 1994. I've lost about 10% kidney function since the surgery as well.

Barbara

[squid56]

Darolyn,
Having an Indiana pouch does not mean automatic SS .They will look at your health records only, it does not matter what problems I or anyone else have had. They will review all your medical records, look at your ability to work etc.
As far my problems though, I have had bowel obstructions and lots of septic kidney infections.

[Ant]

as far as bowel obstructions how affend do you get them and do you end up in the hospital every time? And for how long at a time? Is your pain real bad?

When i get them it seams to be about every 2 months and for about 7 to 10 days and the pain is Unbelievable.

[squid56]

I tend to get them about every two years and they are total obstructions. I need to be on the hospital with an NG tube, pain meds, etc. I have needed surgery for them twice. It always happens in the same area of bowel- I have an internal hernia that can not be fixed so that is where they occur. The pain is unreal- for me I would much rather go through labor again than the pain of a bowel obstruction! I had two children, doing natural childbirth- no pain meds etc. and it was not bad as having an obstruction. I always worry that I may get another one. I know I get partially obstructed fairly often, but I am usually able to get things moving again. Do you go in the hospital when you have them? Have you ever needed surgery for it?

[Ant]

WOW i had to make sure i did not write what you did because i have always told people that i would give birth 30 days in a row rather than have one day of that pain.. The pain is so unreal. I carry Dilotid ( a pain killer) just in case i feel it coming on. I had 2 real bad times this summer and they were going to do emergency surgery but were afaid on popping my pouch and i have so much scar tissue from many many surgerys that they think it would only make it worst.
That by far is the worst pain i have ever felt and i have felt pain, and i know you have too.

[Mater]

hi everyone.
Can some one describe the symptoms of a bowel obstruction? I have been having sharp pains in the lower rt abdomen, very cyclical. Also somewhat a bit constipated, but not totally with out and occasional very small bm.

Thanks in advance for your help.
Chuck

[Ant]

When i get mine it starts out pain like contractions and gets worse very fast like 1 hour and i am screaming and usually at the hospital at this point.
One time i woke up to the pain and my mom had to call the ambulance I keep pain med with me at all times just so when i feel it coming on i can start to kill the pain.
I wish i could tell you more but thats how it is for me,

[squid56]

For me, I am usually very constipated for several days before hand. Then when it becomes full blown I have INTENSE stomach pains that comes in waves as well as nausea and usually I start to vomit large amounts. The pain is what brings me to the hospital, that tends to start before the vomiting.