Stoma Pain

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Darrell45
Posts: 6
Joined: 2014-07-06 21:50:30

Stoma Pain

Post by Darrell45 »

I have had my Kock Pouch for over 40 years. During that time the only significant issue has been blockage due to adhesions. During the past three weeks I have been experiencing pain around my stoma. The pain and associated pressure feels as if it is coming from within my pouch. I have also been experiencing pain in my right groin area and periodically in the right lower back. It is not obvious to me, or my doctor, if there is a connection between the pressure in my pouch and groin area. Periodically my pouch is distended (not due to gas) My doctor has scheduled an ultrasound procedure. I am able to empty my pouch in a normal manner.

Wondering if anyone has experienced a similar situation? Thanks.

Darrell
sassie
Posts: 164
Joined: 2018-10-19 19:22:16

Re: Stoma Pain

Post by sassie »

what did your dr. find out????
Darrell45
Posts: 6
Joined: 2014-07-06 21:50:30

Re: Stoma Pain

Post by Darrell45 »

Sassie, after multiple physician referrals I just found out I have a parastomal hernia, approximately 1.7cm in size. The hernia was identified in an ultrasound. However, due to the location, there is some question regarding the actual size of the hernia. It is located underneath my stoma, in a position that makes it difficult to distinguish between the hernia and the opening of my stoma. I consulted with three physicians and all agree that surgery is not necessary at this time (or maybe ever). I can resume all activities, including exercise (running, gym, etc.). The pain and discomfort I initially experienced has subsided. As you might expect, I remain very vigilant regarding any discomfort with my pouch.

As a point of reference, I am a 73 year old male and have had my pouch for 44 years. I spent a considerable amount of time researching a parastomal hernia. It seems this type of hernia is more often found in newer pouches. I am more than happy to respond to any specific questions I may have not answered in my response.

Darrell
sassie
Posts: 164
Joined: 2018-10-19 19:22:16

Re: Stoma Pain

Post by sassie »

Hi Darrell, i'm new to all this sorta,just passed my year 2/18 but i also have a hernia under my stoma but you do not need a ultrasound to see it, some days it stand my stoma 4 inches like its on top of a mountain, fuuny thing was i saw it 2.5 weeks from surgery and called saying do i have a hernia they said no, 2 months later they said no ,4 months later they said OH you got a hernia...I had that bugger from the get-go , there problem was they always looked when i was flat on my back..I also will not have surgery unless it causes blockage or lots of pain, so far i just push it over to irrigate because lucky me, my stoma don't know how to poop,lol some times reading these post i'm glad as i have some control, just hope it always responds to water,lol

happy to hear you are doing great, God Bless,,sassie
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