I Love Pearls!

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Diane C
Posts: 1006
Joined: 2005-10-02 08:30:29

I Love Pearls!

Post by Diane C »

Especially for ileostomates with watery output, have you tried Trio's Pearls? They are super. When liquid mixes with the sachet, it turns into a gel. I prefer them over Activeone Diamonds which produce a black material that doesn't seem to gel as much (what's with the gem names?!). Here's a video: https://www.youtube.com/watch?v=g3m45CPk3K8

You can get samples of TRIO products here: https://trioostomycare.us/product-category/order-sample

Unfortunately, both can be costly and don't seem to be covered by Medicare or insurance.
Diane C
2000 MACE
2002 Colostomy
2018 Above + anus removed; Ileostomy
2020 Scar tissue removed
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To Dream a Dream
Posts: 1414
Joined: 2010-08-10 18:35:53

Re: I Love Pearls!

Post by To Dream a Dream »

Hi Diane: Thanks for the links. Great to see you upbeat & posting your own gems of wisdom for us. Have you tried Parthenon as to the pricing? They may be of help. Stay safe & keep dreaming.
Crohn's Dx '66 (perforated ileum)
Multiple Bowel Resections
Ileo '77 Revision '85
Celiac Dx
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Diane C
Posts: 1006
Joined: 2005-10-02 08:30:29

Re: I Love Pearls!

Post by Diane C »

Thanks, To Dream. I'll check Parthenon. I've meant to. A rep from Byram is speaking at our next zoomed N Va. support group. I finally received needed samples of high-output pouches so do need to order...
Diane C
2000 MACE
2002 Colostomy
2018 Above + anus removed; Ileostomy
2020 Scar tissue removed
Emma
Posts: 24
Joined: 2022-09-14 16:30:48

Re: I Love Pearls!

Post by Emma »

I have just called Trio to get a sample of the Pearls.

Is there another company that sells this type of product?

Thanks you.
Emma
Posts: 24
Joined: 2022-09-14 16:30:48

Re: I Love Pearls!

Post by Emma »

In searching the forums, I found two recommendations for ParSORB from Parthenon and have just ordered a sample of those. 1-800-453-8898 in Salt Lake City UT.

ETA: Found a recommedation for IleSORB, so called Cymed and ordered a sample of that, as well as one of their 2-pc pouch systems. If someone else needs Cymed.us, the phone is 800-582-0707 in Sarasota FL.

I hope one, or more, of these will help.

If someone knows of another manufacturer of liquid-absorber for the pouch, could you please post about it?


Thank you very much. :)
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danilynn
Posts: 410
Joined: 2008-07-04 13:11:46

Re: I Love Pearls!

Post by danilynn »

Secure Health makes a tablet called Gel-X. I find it easier to use than the Ile-Sorb packets, which tend to stick to the side of my pouch before I get them where I want them.
Danica

Crohn's since age 6
Ileostomy 1993
Emma
Posts: 24
Joined: 2022-09-14 16:30:48

Re: I Love Pearls!

Post by Emma »

@danilynn Thank you! Could you please post the phone number or website for Secure Health? I need to find out the exact ingredients and excipients of the Gel-X, and cannot find them on the internet.
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danilynn
Posts: 410
Joined: 2008-07-04 13:11:46

Re: I Love Pearls!

Post by danilynn »

Emma wrote: 2022-09-18 10:26:54 @danilynn Thank you! Could you please post the phone number or website for Secure Health? I need to find out the exact ingredients and excipients of the Gel-X, and cannot find them on the internet.
Emma, you can find more info here: http://www.ostomyabsorbent.com/
Danica

Crohn's since age 6
Ileostomy 1993
Emma
Posts: 24
Joined: 2022-09-14 16:30:48

Re: I Love Pearls!

Post by Emma »

@danilynn Thank you very much! I appreciate your help. :)
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