Stage 4 Bladder Cancer - 9 Years Later

[Steve Weislake]

Subject line tells my story... Like most I spent several months after the surgery trying sample bags and flanges to come up with one that worked, and I have setteled in and been using Conva Tec for the entire time without problems.
I have had 3 or so UTI's over the years that were taken care of with antibiiotcs but did wind up in the ER due to blood loss twice... This last episode may have started as a UTI, but I now have a bleeding problem at the area where my stoma is attached to the surface skin... It will bleed a few days then clear up for a few days. Doctor wants to watch it and see if it get's better, but it scares me.
I don't fel like this is normal for a uoristomy patient loosing this much blood. I have not needed a transfusion, but my red blood count has been down on the verge every time I wind up in the hospital...
Can this be sewn back up, or will it just take care of itself?

[To Dream a Dream]

Welcome to our Discussion Board & thank you for sharing your story of resilience with us. It is good that you are keeping in close contact with your Medical Support team. If you have access to a WOCN (a specialized ostomy nurse), it would also be a great help for you.
I personally noticed an increasing tendency for the ileostomy stoma that I have to bleed a few years ago & it was determined that a potent omega vitamin product I had been taking was the cause. You might consider checking out your meds for anything that may cause bloodthining & be sure to tell your doctor.
Thank you for visiting our Board & your post. You may find the UOAA main website:
(www.ostomy.org) another good source of information & support, also.