Urostomate for 36 yrs seeks top surgeon for Continent Diver

For discussion of intestinal and urinary diversions that avoid wearing an external waste collecting device.
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Carol in Orlando
Posts: 1
Joined: 2007-09-11 22:15:24

Urostomate for 36 yrs seeks top surgeon for Continent Diver

Post by Carol in Orlando »

Does anyone know of top surgeons in this country that specialize at converting pre-existing, long-term ostomies (35yrs+) into Indiana Pouches of other types of Continent Diversions?

I'm a "young", active 43 yr old that was born with a non-functional bladder.

Urologists I have spoken with have said that it would be a "dangerous" undertaking because my kidneys are so used to having a conduit these past 36 years.

Last year, I had lithotrypsy done due to chronic kidney infections which were caused by recurring bacteria that creeps up the conduit to the kidneys due to peristomal infections caused by "old" urine stuck in the wafer around the stoma & reflux. Any advice or sugeons to call to explore converting my urostomy into a continent diversion?

Thanks, for your help in advance to everyone who replies!
UROSTOMATE SEEKS CONTINENT DIVERSION SPECIALIST
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lesson
Posts: 113
Joined: 2005-10-09 13:05:25

Post by lesson »

Carol,
Three years ago I was a patient at Cleveland Clinic in Florida and one of my nurses had just had this surgery done at the hospital. I don't know which urologist was her doctor.
The website is www.ccf.org if you want to look around or call the department to ask.
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Charles_in_Tx
Posts: 2616
Joined: 2005-10-01 11:07:58

Post by Charles_in_Tx »

http://cms.clevelandclinic.org/urology/
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Lynne
Posts: 508
Joined: 2005-10-01 06:04:13

Post by Lynne »

Carol,
There are a few folks here with Indiana pouches. Hopefully one of them will respond soon to your post.
Lynne, CDN Chair
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squid56
Posts: 796
Joined: 2005-10-20 23:48:34

Post by squid56 »

I had my ileal conduit converted to a version of the Indiana pouch 16 years ago. My ileal conduit was 6 years old. I had mine done at Lahey Clinic in Burlington Ma. They made the in it in the top 25 hospitals for urology. I would check them out.
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formercakid
Posts: 11
Joined: 2007-07-02 18:17:26

Post by formercakid »

Dr. Douglas S. Scherr, MD
Assistant Professor of Urology
Clinical Director, Urologic Oncology
Cornell University/NY Presbyterian Hospital
212 746-5788
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jpotts
Posts: 52
Joined: 2006-07-25 20:06:23

Post by jpotts »

Here in KC MO
Dr. Mark Austenfeld
816-531-1234
Nurse is Brandi and Nurse Practicioner is Jaime Mehl. It is at least worth calling to discuss??
Let go and let God... Jules
Indiana Poucher since May 06
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waterlover
Posts: 15
Joined: 2006-05-03 22:59:00

doctor for indiana pouch

Post by waterlover »

Dr. Shlomo Raz- just put his name under Google.com and you will get his info and even his photo. UCLA med Center, LA ,CA
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Richard Eckstein
Posts: 915
Joined: 2006-02-16 16:27:50

Post by Richard Eckstein »

Carol, try Dr. Alan Klaiman, Winter Park 407-897-3499...

Also give a call to MD Anderson Center in Orlando and ask for referrals from them to Dr's that handle your problem and work out of Orlando Regional.....
Richard Eckstein,CLU
Tour Guide/Host

Every path has a few puddles!!!
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catriona
Posts: 32
Joined: 2007-08-16 22:04:52

DR

Post by catriona »

Edward J. McGuire, M.D.

University of Michigan Urology

http://www2.med.umich.edu/healthcenters ... l_id=67425
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