candidate?

[bittersweet]

I had an emergency ileostomy done in February this year due to UC. Did anyone here have severe proctitis and still have a successful j-pouch?

Thank you!

[Charles_in_Tx]

You may get more info. on the forum on this site:

http://www.jpouch.org/

[lesson]

There is a very experienced colorectal surgeon in you r area,

Dana Launer, MD
Advanced Surgical Associates of La Jolla
9850 Genesee Avenue, Suite 640
La Jolla, CA 92037 (just north of San Diego)
Telephone: 858-558-2272
Facsimile: 958-558-2285
dplauner@advancedsurgical-sd.com
jworsey@advancedsurgical-sd.com
www.advancedsurgical-sd.com

If he agrees with your surgeon, ask him to discuss if you are a candidate for another option; Kock pouch, which he also does, and is very experienced at.

The Kock is an internal pouch constructed of small intestine. There is a flush (skin level) stoma, that is covered with a pad of choice. The pouch is emptied by inserting a catheter through the stoma into the pouch.

[bittersweet]

Thanks

[bbcopper]

Hi Mish, I had an emergency ileo due to UC 2 years ago and I am now 16 months into my jpouch. Pretty much from the get go I was having more frequency and urgency than I thought I should have. It took me 10 months to finally take some action, but when I did life was much better. I had "cuffitis", which is UC in the remaining rectal tissue that was left to connect the pouch to. I started treatment with flagyl which worked well, but when it became apparent that I would need continuous meds I was put on cypro and amitriptyline.

I had asked my surgeon what would happen if the meds were to stop working. She explained to me that she had only left very little rectal tissue as it was in terrible shape. It sounded like I had much less than an inch. She said that she could go back in and scrape the remaining tissue away and reconnect me, but that there was always the chance that things may not work as well. I believe that the protocol for the jpouch used to be the total removal of all rectal tissue, but it was then found that they had better success if a small amount of tissue was left behind.

So, an inch should definitely be more than enough to perform the jpouch procedure. Finding the right surgeon is the key. The surgeon will have to evaluate the health of the rectal tissue you have remaining and see if meds might be able to keep it under control.

Good luck

Brian

[brlopinto7]

Hello,

I have your exact symptoms of cuffitis and have tried so many things to get this under control. Are you still taking antibiotics?