UOAA Discussion Board

My husband currently has a colonostomy and most likely will have a ileostomy next year. he suffers from UC and possibly crohns. We are doing several tests next week thagt are being sent to California for the results. The Gi thinks UC may have developed into Crohns.

I really like these posts and the name Dr. Fazio has been in several places. Does anyone know of a colo-rectal surgeon in the central illinois area they would reccommend in the event this is needed?

I know his GI has resources and we really like him. I just thought I would see if anyone had a name and if they match with the ones the GI reccommends that would be even better.

Thank you,
Lisa

Dr. Julius Bonello, Associated Surgical Group, 7303 N. Knoxville Ave., Peoria, IL 61614 is an excellent surgeon and has extensive experience with ostomies and other colorectal surgeries. Phone is 309-691-4005 and website at www.asg-peoria.com.

marathonrunner

Hi Linda, i just had my kock pouch done in Toronto, Canada at Mt. Sinai Hospital by Dr. Robin McLeod. Prior to the surgery, i researched the BCIR procedure and met with a Dr. in London, Ont., Dr. Taylor, who said he would perform that procedure for me as well. I choose Dr. McLeod because she did my initial surgery 20 years ago and i really like and respect her. Dr. Taylor suggested that these days, the Kock and Bartlett procedure are basically the same - both using only your own body tissue - the placement of the valve perhaps being the only difference. So there are two doctors in Ontario, Canada that are performing continent ileostomies. Hope this info helps.

Tori is correct. The two procedures are basically the same. There is some difference in the construction of the stoma though.

Lynne

Dr Bauer in NY is still doing the kock pouches.

Kathy

Kathy,

Thanks for keeping us updated !

Lynne

My surgeon is Dr. E. Rehnke affiliated with the BCIR program at Palms of Pasadena Hospital. The website is www.BCIR.com and the phone number is 1.800.336.0789. I hope this can help someone in the future.

hi & Thankyou, I probably will be making an appointment next mo. I hope I can star in Florida, that would be so great. If Pasedna can't take me as a patient, I Have to go back to having the bag.
I took that trip 25 years ago, I don't want to there again. I hope those doc's are good up there. I have no where to turn.

kathy

Has anyone heard of Dr. Sang Won Lee in NYC? He is part of the Milsom team at Cornell Weill.

I've not heard anyone speak of him before, but some details of him can be seen at this link on the hospital's website:
http://www.nyp.org/FPHTML/1168360284914.html

It's good of them to list the insurances that are accepted - haven't seen that before.

(I'm pretty sure that isn't him in the top photo )

The surgeon doing my reversal is Dr. Kirk Ludwig at Duke. He is a colo-rectal surgeon who currently teaches at Duke and also worked at The Cleveland Clinic for several years. His contact info is:

Dr. Kirk Ludwig
DUMC 3262
Durham, NC 27710
(919)681-3977

http://www.dukehealth.org/physicians/D4 ... ght=Ludwig

I realize that this is an old post, but nevertheless on a personal campaign to bring back awareness for the Kpouch. I had my done in 1980. This is from another forum - hope it helps anyone.

http://j-pouch.org/eve/forums/a/tpc/f/5 ... m/23110816

Much of this info here is outdated.
I have a current list if you would like me to post it and I have verified it with the drs personally.

Dr.Gregg Shore -
St Anthonys Hospital
Center for Intestinal Continence
1201 5th Ave.N.,St. Petersburg , FL 33705

1-888-825-1495 www.intestinalcontinence.com

He trained at Cleveland Clinic as well as other hospitals.
Great bedside manners and does his own scopes when he scopes a pouch that is calling problems, so he can see issues much easier than from a report by an Endosocopy type Dr.
Does the BCIR and JPouch along with other surgeries as well.

Fran Russell is a great contact as she runs his office and ran Dr. Pollacks when he was at Palms of Pasadena.
Very professional and caring staff IMPO!
Fran's email is bcirfran@yahoo.com

BEST WISHES
I will keep you in my prayers that it works out for you as you like.

TAKE CARE AND GOD BLESS!

This was from extensive research. Hope it helps.

1.Dr.Gregg Shore-

1201 5th Ave.N.,St. Petersburg , FL 33705

1-888-825- 1495

www.intestinalcontinence.com

2. Dr.Jeffrey Milsom

1315 York Ave.,NY,NY

212-746-5597

www.cornellphysicians.com/jwmilsom/
4. Dr.Joel Bauer and

5. Dr.Stephen Gorfine and

6. Dr. David Bub

25 E. 69th St. NY,NY 10021

212-517-8600

www.colonsurgeryinfo.com/ dtcf/pages/CDSymptomsScreening.htm
7. Dr.Dana Launer and

8. Dr Michael Jonathan Worsey and

9.Dr.Gail Salganic

9850 Genesee Ave., LaJolla,CA 92037

858-558-2272

www.scripps.org/physicians/4569-launer

launer.dana@scrippshealth.org

10.Dr.Feza Remzi-

9500 Euclid Ave.,Cleveland, OH 44195

1-800 -223-2273 and

3. Dr. David Dietz

www.ccf.org



11.Dr.Alex Ky(kee-female)

5 E. 98th St #11,NY,NY 10029

212-241-3547
12.Dr.David Sung

1260 15th St.,Santa Monica, CA

310-395-6123
13.Dr Paul Williamson

110 W. Underwood St.,Orlando, FL 32806

407-422-3790

www.crcorlando.com
14.Dr. Rolando Rolandelli

95 Madison Ave., Ste 304C, Morristown ,NJ 07960

973-971-4105 or 973-971-7200

15.Dr.Robert Jacobson

5327 N.Central Expwy., Ste 200, Dallas, TX

214-824-1730

16.Dr.Sandy Fogel

213 McClanahan St SW, #404, Roanoke,VA 24014

540-342-6346


17.Dr. Gary Lieskovsky-urologist-USC-LA,CA 1-323-865-3702(scope only)

18.Dr. David Beck

1514 Jefferson Hwy.,New Orleans, LA

1-800-348-7875(outside LA)1-800-874-8984

http://www.ochsner.org/page.cfm?id=229

19.Dr. Jacques Heppel-Mayo Clinic(management only)

13400 Shea Blvd. Scottsdale,AZ 85259

1-800-446-2279

20. Dr. James Becker

Boston University Medical Center

Boston, MA

617-638-8600

jamesbecker@bmc.org

(scope only)

21.University of Louisville
Susan Galandiuk, MD(learned from Dr Fazio too)
Section of Colon & Rectal Surgery
550 S. Jackson Street
Louisville, KY 40202
(502) 852-4568
susan.galandiuk@louisville.edu



22. Dr. Guy R. Orangio

Atlanta, GA

770-995-9528

www.gcrsa.com







Not in USA
1.Dr Leif Hulten, Goteborg , Sweden (retired but teaching)

leif.hulten@surgery.gu.se
2.Dr.Bokey, Sydney , Australia- +61297676846(not encouraging k pouch)
3.Dr. Zane Cohen, Toronto , Canada 416-586-8346

www.mtsinai.on.ca/ibd/IBDC/bios/bio_zcohen.htm
4. Prof. Helge E. Myrvold, Trondheim, Norway +47 95055225(retired but in the loop)

5. Taylor, Brian M
Yes
P:

Univ Campus, Surg Rm 8 OF12
339 Windermere Rd
London , ON N6A 5A5
CANADA