The FNSD Sisterhood
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Re: The FNSD Sisterhood
Why must things always happen to me? I am again in the ER after eating almonds of all things seems i have an obstruction again. Forgot how horribly painful these things are. Had them last night and i was up all night with nausea and extreme pain all the tell tale signs.
neurogenic bladder and T6 paraplegic ileal conduit 2/15/2011
Re: The FNSD Sisterhood
Smash, what's your status?
I was getting my remicade Tuesday and for no apparent reason, my BP dropped and i almost passed out. I took a ride to go 2 blocks to my ER. some bloodwork, a urine, fluids and an EKG later, i was discharged and told not to go to werk.
Happy Friday Eve everyone.
I was getting my remicade Tuesday and for no apparent reason, my BP dropped and i almost passed out. I took a ride to go 2 blocks to my ER. some bloodwork, a urine, fluids and an EKG later, i was discharged and told not to go to werk.
Happy Friday Eve everyone.
Stomas are red
Asphyxia is blue
Yes I am very morbid
And darn cynical too
Asphyxia is blue
Yes I am very morbid
And darn cynical too
Re: The FNSD Sisterhood
Came home yesterday, they feel it was either adheasions or gastroenteritis. Either way i am still sore but better.
neurogenic bladder and T6 paraplegic ileal conduit 2/15/2011
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To Good Health
- Posts: 1972
- Joined: 2009-12-22 07:36:28
Re: The FNSD Sisterhood
smashms and sinfulsot, you both have been in the wars. I have no advice. Just keep plugging along.
All the best,
To Good Health
All the best,
To Good Health
Chemo/rad Mar 07
APR/ileo May 07
Perm colostomy 2009
Perforated colon Nov 2013
APR/ileo May 07
Perm colostomy 2009
Perforated colon Nov 2013
Re: The FNSD Sisterhood
Better is usually good.
I still have to get in touch with my gastro. he is on vacation atm.
I still have to get in touch with my gastro. he is on vacation atm.
Stomas are red
Asphyxia is blue
Yes I am very morbid
And darn cynical too
Asphyxia is blue
Yes I am very morbid
And darn cynical too
Re: The FNSD Sisterhood
Been a bit since i posted just thought i would check in, was supposed to go to the doctor on wednesday however i slept through my appt. so i emailed them to get another one setup asap. Yesterday was a busy one getting ready for my bff's wedding tomorrow. Then my birthday is on sunday. Overall i feel pretty good still thank god. Still very tired and a bit nauseous as well but the meds are helping with that. Am still having episodes of a-fib however but have managed to stay out of the ER so far. I go back to the electrophysiologist on aug 19 to discuss where we go from here. He wanted my kidney numbers to recover first and i think they have so far. Last i knew they were back to my baseline. Well tomorrow is going to be a busy one and a late one hopefully i can get a nap before we have to leave.
neurogenic bladder and T6 paraplegic ileal conduit 2/15/2011
Re: The FNSD Sisterhood
Soooo? How was the wedding??
Stomas are red
Asphyxia is blue
Yes I am very morbid
And darn cynical too
Asphyxia is blue
Yes I am very morbid
And darn cynical too
Re: The FNSD Sisterhood
The wedding was amazing. Had so much fun then went to the race track for my birthday on sunday and hit a triple. Almost tripled what i went with. I am paying for this weekend today however came down with a cold i think and the nausea is back again with a vengence. Thank god i have meds for it still however and they have been working so far so i think this time i can remain home unless things change.
neurogenic bladder and T6 paraplegic ileal conduit 2/15/2011
Re: The FNSD Sisterhood
Hello Sisterhood. I am new to UOAA. I laughed out loud when I read "Stomas are red..." Thank you! You sound like a fun group.
I was given an ileostomy in March this year for stage III, then did one treatment of Folfox and had enough. Does that qualify me to join your group? As a new "survivor" I have been looking for a support group but none are locally available to me. This cancer has been a wild ride and I need all the fellowship I can find.
I'm still learning how to navigate an online forum. What are the Quote, Code, List buttons for?
Anyway, hope everyone keeps up the good fight.
Petra
I was given an ileostomy in March this year for stage III, then did one treatment of Folfox and had enough. Does that qualify me to join your group? As a new "survivor" I have been looking for a support group but none are locally available to me. This cancer has been a wild ride and I need all the fellowship I can find.
I'm still learning how to navigate an online forum. What are the Quote, Code, List buttons for?
Anyway, hope everyone keeps up the good fight.
Petra
Re: The FNSD Sisterhood
Quote is to quote another user's post in your own post.
Code i think is for HTML or other forum markup symbols. list is more specifically for lists, with said markup symbols.
And i think once you catch cancer, you're in the club...
Code i think is for HTML or other forum markup symbols. list is more specifically for lists, with said markup symbols.
And i think once you catch cancer, you're in the club...
Last edited by Sinfulsot on 2015-07-30 05:42:44, edited 1 time in total.
Stomas are red
Asphyxia is blue
Yes I am very morbid
And darn cynical too
Asphyxia is blue
Yes I am very morbid
And darn cynical too
Re: The FNSD Sisterhood
Well just back from the doctor and i have a cold. Got home and went on the portal and she put in my chart i have drug seeking behavior. So i both emailed her and called her and told her to remove it immediately why must she make it so difficult for me when i am truely in pain. She is compromising care now and i am not happy. All because i asked her for a script for a stronger cough medicine so i could sleep at night. Ugh.
neurogenic bladder and T6 paraplegic ileal conduit 2/15/2011
Re: The FNSD Sisterhood
Oh! That sucks! Doesn't your doctor have any empathy? Why do some doctors refuse to be human? I think I would look for a new one.
In a hurry today, but want to thank Sinfulsot for her reply. Petra
In a hurry today, but want to thank Sinfulsot for her reply. Petra
Re: The FNSD Sisterhood
It really sucks because i trusted this doctor as i have been with her for years! Going to make another appointment with her and get this taken out of my chart immediately. Already have 2 calls into her as well as an email. I just cannot believe that she would do something like that behind my back and without even talking to me about it first.
neurogenic bladder and T6 paraplegic ileal conduit 2/15/2011
Re: The FNSD Sisterhood
Dear smashms - good idea to tackle the subject with your doctor directly. Maybe your doctor was having a bad day too. Let us know how it works out. Petra
Re: The FNSD Sisterhood
Thank gods it's Friday, Sisters.
Stomas are red
Asphyxia is blue
Yes I am very morbid
And darn cynical too
Asphyxia is blue
Yes I am very morbid
And darn cynical too
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