does anyone have a barnett pouch or an outside colostomy?

TAM22 · Post by **TAM22** » 2006-05-28 16:43:25

With the way I've been living for the past 7-8 years and going through 3 major surgeries(pull thru) to remove my colon due to UC, I need a change and a better way of life. I still have UC and have missed so much because of my illness. My options for a better quality of life seem to be the pouches, but I don't know which one to consider. Please help me and give your thoughts, advice and experince with the two different pouches. I don't want to miss the rest of my life.

tam22

lesson · Post by **lesson** » 2006-05-30 09:12:44

UC is no fun to live with and you certainly sound ready to change that.
How much research have you done on the continent procedures?
I have a Kock pouch. It was done in January this year at the Cleveland Clinic in Cleveland by Dr. Fazio. This is my second one. The first one I had for 24 years until it had a slipped nipple valve. The slipped valve and pouchitis are the most common problems with any continent pouch.The slipped valve can usually be repaired (not so in my case). I had an end ileo (requiring an outside pouching system) for 2 1'2 years. Then was able to have anothe Kock. I like my quality of life better with it.
There are two doctors at Cleveland Clinic in Weston who are able to look after the Kock should I need medical assistance.
The decision is yours. Make sure you ask lots of questions and understand the surgery. post-op and living with a continent ostomy well. Here is a link that has a section for Kock pouches. You may find some info here so read all the topics.
http://st80.startlogic.com/~ostomate/cg ... b2/YaBB.pl

SugaAngel4u · Post by **SugaAngel4u** » 2006-05-30 16:13:20

i had an ileostomy for 6 years and finally had a reversal in '01. the ileostomy saved my life and prevented the physical ailments i would have had if not for the surgery. if an ostomy makes life bearable then it is definitely worth it.

TAM22 · Post by **TAM22** » 2006-06-01 09:39:31

Thanks to everyone who replied. But bad news, rather worse news, has occured. I just found out that I have Chrones in what I have left(6 in.) of my ileom. So I have both!

Now they are telling me they won't even consider me for an ostomy because of Chrones. Back to sqare one or a different square. Wish me luck.

tam22

mjyokell · Post by **mjyokell** » 2006-12-12 07:33:47

I would highly recommend you consider the BCIR. I had it done after my original illeostomy. The bag did not give me the quality of life I wanted or was used to. I had the illeostomy in 1993 and the BCIR in 1996. It was the best thing I have ever done. I play racquetball, play golf and ride a motorcycle (Harley) everyday. In fact 2 years ago I drove my motorcycle from Memphis, TN to Sturgis South Dakota. I drove 725 mile the first day. It was a ball.

Lynne · Post by **Lynne** » 2006-12-13 20:27:56

I just wanted to point out that the BCIR is ONE type of Continent Ileostomy, devised by Dr. Barnett and done mostly in South Florida. Dr. Fazio and his team at the Cleveland Clinic do the Koch Pouch, very similar, devised by Dr. Koch, and there are surgeons in California and New York also doing Koch pouches. Again, they are basically similar, both internal and emptied with a catheter.

Lynne