Urinary diversion vs. Urostomy: Help!

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randyhenniger
Posts: 9
Joined: 2011-10-20 17:46:27

Urinary diversion vs. Urostomy: Help!

Post by randyhenniger »

Calling those with both a colostomy (or iliostomy ) and urostomy....

I have had a colostomy for 27 years and find that it does not interfere with any activities I enjoy; surfing, hiking, biking, swimming and being intimate with my wife. If I hadn't chosen a treatment for colon cancer that included a permanent colostomy, I am certain I would not be here today.

Due to complications from pelvic radiation for colon cancer (and getting older lol) my bladder function is declining. I have had multiple UTIs due to incomplete voiding and frequent incontinence. In an attempt to resolve this, I have recently had urethrea reconstruction surgery (Oct. 25, 2013), but the outcome was not what was expected. I still struggle to void my bladder and have continued leakage. Most troublesome, especially at work.

Now you would think that since I've learned to live well with one ostomy that having another would be no big deal...right? Wrong, I am still trying to justify why I should live with incontinence. Crazy, huh?

Anyway, I am seeking advise from other double ostomates about their experience with both a colostomy (or illy) and urostomy.

Thank you for taking time to have read this and reply. WOCN input is very much appreciated also!

Be WELL!
Randy (OstomyMan) Henniger
TheOstomyMan@gmail.com
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squid56
Posts: 796
Joined: 2005-10-20 23:48:34

Re: Urinary diversion vs. Urostomy: Help!

Post by squid56 »

Is an internal aka continent urostomy an option for you? I started off with the standard ileal conduit, but after 6 years had it converted to my Indiana pouch. I still have a stoma, but I just keep it covered with either gauze and tape or special stoma band aids. It is about as close to being "normal" as one can be with out a bladder. I just catheterize several times a day to empty the urine. I sleep through the night, I love my pouch. I do need to say though that it is a longer more complex surgery and you need to find a surgeon that does lots of them. The recovery takes longer and you will need to "train" the pouch to hold increasing amounts of urine, BUT after all the healing and training are done it is so worth it. Judith
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