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hi guys I'm went to rehab the other day near my house.
my insurance finally approved it. I'm inpaitent rehab.
they are feeding me all my food chopped really small.
I still only went today 250ml so far. yesterday I went only
350ml the whole day. the doc at rehab and my surgeon
are not concerned. the rehab keeps on shoving food at
me to put weight on. I have an appointment with surgeon
this week for follow up. what's good to increase my
output. is it okay to have 1 cup of grape juice daily
around 2pm and miralax right before bed. My
ilestomy is such a pain to manage. I was approved for
rehab only a short time. I hope I get the hang of this soon.
need more help please.
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Re: need more help please.
Steve:
The rehab experience will hopefully be beneficial in giving you added supportive recovery time.
Surgery can throw a whallop of a punch if you went into surgery in a decompensated state due to the effects of the underlying ulcerative colitis. Some people with Chron’s and UC are very sick as they roll into the operating room - in pain, malnourished, immunosuppressed, with systemic cumulative effects of glucocorticosteoids or biologic medications.
Take in the positive benefits of the rehabilitation stay. The physical and occupational therapies should have you gaining in strength and will lift your emotional spirits as you re-engage in meaningful activities.
The nursing care in a skilled nursing facility, however, can be less than you are accustomed to. You may have to teach your nursing care aids how to help support you with ostomy care. Ostomies are not something that SNF staff see on a routine basis.
Many people with a new ileosotmy have the experience of too rapid of transit time and large volumes of output. You are experiencing the polar opposite, most likely because your intestine reacted to the trauma of surgery by “shutting down” and slowing transit to a crawl.
Gentle feeding is key. Small snacks and mini-meals. You will benefit from soft/easy to digest foods of high quality.
Do NOT let the staff pressure you to eat more than you can comfortably tolerate. An overly aggressive approach to re-feeding will backfire. Sure, gaining weight may be important for you. But gaining weight as muscle will serve you far better than a fast-track methodology to merely fatten you up.
It is good that the facility is chopping up your food into small pieces. This reduces the mechanical work of digestion and should ease the burden that your recovering intestine is feeling.
You can have a cup of grape juice. No problem.
The use of Miralax will have to be under the guidance of your physician. It will be helpful as long as your intestine is under-powered from the trauma of the surgery, where the slowing of your motility has been comcerning. The use of Miralax will need to be evaluated day to day as to how much to dose.
Recovery from ileostomy surgery takes time. It requires mentally relinquishing any prior assumptions or expectations of a fast recovery and accepting what is. Going with the flow.
I binge-warched many a NetFlix program and completed several 500 piece jig saw puzzles as I recovered. I watched the hummingbirds come to the feeder and enjoyed their dive-bombing aerodynamic antics.
Know that 4-6 months from now you will be in a far better place than you are now.
Best wishes to you that today is a good day,
Karen
The rehab experience will hopefully be beneficial in giving you added supportive recovery time.
Surgery can throw a whallop of a punch if you went into surgery in a decompensated state due to the effects of the underlying ulcerative colitis. Some people with Chron’s and UC are very sick as they roll into the operating room - in pain, malnourished, immunosuppressed, with systemic cumulative effects of glucocorticosteoids or biologic medications.
Take in the positive benefits of the rehabilitation stay. The physical and occupational therapies should have you gaining in strength and will lift your emotional spirits as you re-engage in meaningful activities.
The nursing care in a skilled nursing facility, however, can be less than you are accustomed to. You may have to teach your nursing care aids how to help support you with ostomy care. Ostomies are not something that SNF staff see on a routine basis.
Many people with a new ileosotmy have the experience of too rapid of transit time and large volumes of output. You are experiencing the polar opposite, most likely because your intestine reacted to the trauma of surgery by “shutting down” and slowing transit to a crawl.
Gentle feeding is key. Small snacks and mini-meals. You will benefit from soft/easy to digest foods of high quality.
Do NOT let the staff pressure you to eat more than you can comfortably tolerate. An overly aggressive approach to re-feeding will backfire. Sure, gaining weight may be important for you. But gaining weight as muscle will serve you far better than a fast-track methodology to merely fatten you up.
It is good that the facility is chopping up your food into small pieces. This reduces the mechanical work of digestion and should ease the burden that your recovering intestine is feeling.
You can have a cup of grape juice. No problem.
The use of Miralax will have to be under the guidance of your physician. It will be helpful as long as your intestine is under-powered from the trauma of the surgery, where the slowing of your motility has been comcerning. The use of Miralax will need to be evaluated day to day as to how much to dose.
Recovery from ileostomy surgery takes time. It requires mentally relinquishing any prior assumptions or expectations of a fast recovery and accepting what is. Going with the flow.
I binge-warched many a NetFlix program and completed several 500 piece jig saw puzzles as I recovered. I watched the hummingbirds come to the feeder and enjoyed their dive-bombing aerodynamic antics.
Know that 4-6 months from now you will be in a far better place than you are now.
Best wishes to you that today is a good day,
Karen
Intestine perforation, sepsis, ileostomy, 2012
Addison’s disease + endocrine failure
Palliative Care
Addison’s disease + endocrine failure
Palliative Care
Re: need more help please.
everything Karen has said listen to she knows best but if you were home after surgery can i ask why you are now inpatient in rehab? if you were able to go home in-between you should be able to handle outpatient rehab i would think. or at the very least someone coming to your home for PT/OT
neurogenic bladder and T6 paraplegic ileal conduit 2/15/2011