Hi! New ileo, questions about diet

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Phoenix924
Posts: 2
Joined: 2019-09-27 20:31:49

Hi! New ileo, questions about diet

Post by Phoenix924 »

Hi all,

Lovely to be here with all you fine folks. Me? Long time ostomate, originally a colostomy for 11 years, now ileostomy. And I have questions!!! Whewwww caring for myself now with the ileo is way more challenging than I had originally thought! What do you all do to help slow transit time? I have 7ft of small bowel left (yikes!) and I’m having trouble with some meds just rushing right out.

Thoughts?

Thanks in advance,
Phoenix924
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ron in mich.
Posts: 1530
Joined: 2005-10-18 11:56:17

Re: Hi! New ileo, questions about diet

Post by ron in mich. »

Hi Phoenix I,ve had my ileo. for 34yrs. and a resection done on it last year and I have a problem with transit time as the new ileo. works too good so what I do is snack on bananas, applesauce, and peanut butter oncrackers in between meals and that thickens and slows down transit time.
xctm1
Posts: 29
Joined: 2013-11-21 23:04:55

Re: Hi! New ileo, questions about diet

Post by xctm1 »

P, Make sure you talk to your prescribing doctor(s) and ensure they know about the medication problem. Some meds are designed to dissolve in the colon and just won't work for us. Some can be ground up or dissolved but some definitely shouldn't be either and finally some meds can even be prescribed in liquid form. I've had to have this discussion with several MD's. Don't accept defeat. Take care, it's the only body you'll ever have. Larry
Phoenix924
Posts: 2
Joined: 2019-09-27 20:31:49

Re: Hi! New ileo, questions about diet

Post by Phoenix924 »

Thanks very much for the advice, it means a lot.
My prescriber is working with me on figuring things out. I’m taking immediate release vs the extended to make up for the lack of colon. I’m taking extra steps to slow transit so hoping that’ll work. Delicate balance between keeping output moving vs. major pancaking from too much fiber!
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Jimbob
Posts: 3592
Joined: 2007-06-18 17:40:16

Re: Hi! New ileo, questions about diet

Post by Jimbob »

Maybe this will help with information. https://www.ostomy.org/diet-nutrition/
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