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has anyone out there had this done?
it's when ur ureters are implantd into the sigmoid colon and thus enabling ur colon to act as a bladder...
i know it's not carried out much (mine was done in 1978) but i'm 29 now and have been informed by my drs that i'm at risk of colo-rectal cancer now due to this procedure being in place for so long. but they are hesistant about changing my system bc i'm 99% continent. my kidneys are in a poor state however and i've had a partial nephrectomy already. blood pressure suffers too and take quite a few medications on a daily basis.
anyway, anyone out there in the same position?
Thanks folks
best wishes,
ali
xx
ureterosigmoidostomy (USM)
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Charlene A
- Posts: 323
- Joined: 2006-07-08 08:56:53
Hi,
I have been looking at this website for many months but never registered so I thought it was time especially when I saw your post. I think I had the same type of surgery but mine was called Heitz-Boyer. I am now 45 years old. I was born with bladder extrophey. I had my surgery done when I was 6 years old in 1966 at Children's Hospital in San Francisco, California. I never had any problems with the surgery other than incontinence at night. I did have frequent kidney infections more so when I was a young child.
In 2003 I had a colonoscopy after the birth of my first child and they found polyps on my colon where the ureters where implanted into my colon. The polyps were adenomas (pre-cancerous). We found out that this was something that were finding to be happening to people who had this type of surgery. I was to have surgery to have that portion of my colon removed and an Indiana Pouch made but found out I was pregnant with my second child so everything had to be put on hold. I had the polyps snared off to buy some time and hope that they would not grow back cancerous. I would have periodic sygmoidoscopys to monitor the growth of the polyps to make sure they weren't growing back too quickly before I was to give birth.
To make a long story short.....I had my second child, he was a c-section just as my first was, and 3 months later I had my surgery for my Indiana Pouch and colon. It was a hard and emotional recovery but now everything is going fine. I did develop an incisional hernia and had that repaired 6 months after my surgery.
We have moved twice since my surgery (my husband is military) so each time we move I have to find a colo-rectal surgeon and an urologist who is familiar with Indiana Pouches. The urologist is the hard part since not many perform this type of surgery. I had the initial surgery done in Honolulu, Hawaii in 2004 by some very good doctors at the military hospital.
Hope this information helps.
Lisa
I have been looking at this website for many months but never registered so I thought it was time especially when I saw your post. I think I had the same type of surgery but mine was called Heitz-Boyer. I am now 45 years old. I was born with bladder extrophey. I had my surgery done when I was 6 years old in 1966 at Children's Hospital in San Francisco, California. I never had any problems with the surgery other than incontinence at night. I did have frequent kidney infections more so when I was a young child.
In 2003 I had a colonoscopy after the birth of my first child and they found polyps on my colon where the ureters where implanted into my colon. The polyps were adenomas (pre-cancerous). We found out that this was something that were finding to be happening to people who had this type of surgery. I was to have surgery to have that portion of my colon removed and an Indiana Pouch made but found out I was pregnant with my second child so everything had to be put on hold. I had the polyps snared off to buy some time and hope that they would not grow back cancerous. I would have periodic sygmoidoscopys to monitor the growth of the polyps to make sure they weren't growing back too quickly before I was to give birth.
To make a long story short.....I had my second child, he was a c-section just as my first was, and 3 months later I had my surgery for my Indiana Pouch and colon. It was a hard and emotional recovery but now everything is going fine. I did develop an incisional hernia and had that repaired 6 months after my surgery.
We have moved twice since my surgery (my husband is military) so each time we move I have to find a colo-rectal surgeon and an urologist who is familiar with Indiana Pouches. The urologist is the hard part since not many perform this type of surgery. I had the initial surgery done in Honolulu, Hawaii in 2004 by some very good doctors at the military hospital.
Hope this information helps.
Lisa