Contrast enema CT scan experiences?

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betrue
Posts: 4
Joined: 2021-11-21 11:30:19

Contrast enema CT scan experiences?

Post by betrue »

Love all the firsthand insight. Thank you! I don't mean to scare anyone but I had a rare but really awful experience with a preop test. Now I am wondering what the "normal" experience has been for other ileostomates.
I went in for a non-barium contrast enema CT scan so my doctor could see how my coloanal reconnection had healed from July 2021 surgery. (prior surgery June 2019 for ovarian tumor) No leaks detected. Per doctor, okay to go forward with ileostomy reversal. About 6 hours later I went to the ER. It would seem the test itself caused a bowel perforation.

After my hospital stay, I had a follow up visit with my doctor. He informed me that none of his patients ever experienced any (?) side effects from the enema procedure and this is a standard test that he uses all the time. Therefore all my symptoms were because of the perforation. In contrast, the on-call night nurse (with on-call doctor access) whom we called before going to the ER, informed us that my symptoms were "normal" post-procedure side effects. I had severe abdominal cramping with little control over the voiding of my bowel still half full of enema fluid when I left the lab (muscles not used in a long time) and vomiting until nothing left. Somewhere in the process I was told - probably while in the radiology lab - that irritation from the contrast and slight cramping were possible side effects. I don't remember receiving any other warnings. So I am confused as to what should have been normal symptoms and what should have been big red flags. I would love to hear what other ileostomates have experienced with this test - fluoroscopic contrast enema scan or similar tests.
Angelee
Posts: 4
Joined: 2021-12-19 13:22:38

Re: Contrast enema CT scan experiences?

Post by Angelee »

I noticed that you have not received a response to your post so I registered for this forum so I could answer. I had my first enema CT scan in November of 2020 while I was in the hospital. At the time I still had my entire colon. While it was uncomfortable it was bearable. I had a second CT scan in early December of this year in preparation for an ileostomy reversal.This time I had had a partial colectomy. It was the most painful experience of my life, worse than before I had wound up in the ER prior to multiple surgeries.I had severe cramping during the procedure and for three days afterward. Like you I also had nausea and vomiting afterwards. I will never have that test again. So you are not alone. I do think that our experience was not typical. I hope this is helpful.
betrue
Posts: 4
Joined: 2021-11-21 11:30:19

Re: Contrast enema CT scan experiences?

Post by betrue »

Yes, always helpful to know that I am not alone. My suspicion is that others do have some side effects from the test but that they don't rate a mention for most people because for them the test was a minor annoyance compared to everything else they are going through.
Angelee
Posts: 4
Joined: 2021-12-19 13:22:38

Re: Contrast enema CT scan experiences?

Post by Angelee »

Have you had the reversal? If so and you are willing I would like to compare notes.
betrue
Posts: 4
Joined: 2021-11-21 11:30:19

Re: Contrast enema CT scan experiences?

Post by betrue »

My reversal surgery has been put off for several more months. Dr wants the perforation to heal and to be sure that my July anastomosis surgery site has fully healed since he thinks the perforation was an indication that I haven't healed from that yet. I will post updates as they come.
Angelee
Posts: 4
Joined: 2021-12-19 13:22:38

Re: Contrast enema CT scan experiences?

Post by Angelee »

I am a little over three weeks post reversal. There are some issues but I am happy that I had the surgery. If I can help you in any way please let me know. Happy new year!
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