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ileostomy
Posted: 2023-01-24 11:09:47
by paula
Hello everyone, I have an ileostomy and change my appliance every 4 days. Just wondering if there`s anyone who goes longer than this. Am afraid to go longer, because of the skin around the stoma.
Thank you for your input.
paula
Re: ileostomy
Posted: 2023-01-24 12:55:32
by NEskier
When I was working in an office I usually stuck to four days. I didn't EVER want to deal with more than emptying there. And no one there knew about my ileo. Once I retired from that (I teach Pilates now) I started letting it go longer. Definitely five, often six days. I do fill the slightly eroded part with Stomahesive paste so the skin isn't exposed. I have no idea if that helps but it does make me feel better! Honestly, based on the usual condition of the flange when I remove it, I could go a week.
Others here should add their experience. As always, YMMV!
Re: ileostomy
Posted: 2023-01-24 13:51:11
by paula
Thank you so much for your reply. I definitely feel like I go more days.
Re: ileostomy
Posted: 2023-01-24 15:22:30
by Mara
I often change once a week - sometimes more frequently if I feel I am going somewhere and don't want any issues - not that I have many leaks but better safe than sorry. And when I travel away from home - that is, at least an overnight trip or flying I will change before I leave....
I use an Eakin seal so that usually fills around the stoma okay....
Re: ileostomy
Posted: 2023-01-27 12:05:03
by ileo73
I do twice a week.
I figure even if the ostomy will hold more than four days, I don’t want to let any skin mischief have that long to develop.
And by having a regular weekly schedule, I’ve got more control over when and where I change.
Re: ileostomy
Posted: 2023-01-28 06:47:10
by paula
Thank you all for your input. Its greatly appreciated.
Re: ileostomy
Posted: 2023-02-02 09:41:05
by To Dream a Dream
Because I have an ileostomy (performed after extensive small bowel resections), I have very corrosive effluent from the stoma. Necessitating more frequent changes. Getting two or at best three days out of an extended-wear wafer. I also use a barrier wipe to protect my peristomal skin beneath it. And reinforce the wafer with a Sure Seal Ring (ordered thru Parthenon.)
Re: ileostomy
Posted: 2023-02-18 02:25:02
by Diane C
I also have an ileostomy and change at least twice/week but that's because I also have a pancreatic condition that can result in diarrhea. It probably would be best if I changed 3x week. Leakage can mean a lot of laundry and I want to avoid that more in the future! I also use a seal, stomahesive strips, and a Sure Seal Ring which I'd definitely recommend.
Good luck!
Re: ileostomy
Posted: 2023-02-20 11:17:55
by paula
Thank you for your response, its greatly appreciated.