UOAA Discussion Board

I'm basically this on how effectively (or not) certain foods digest using only a stomach.

I love eating great and healthy vegan food. Can't get enough of it actually.

Just it doesn't agree with my illeostmy. Well as long as it's a juice, most of the solid stuff doesn't digest in the stomach and could cause a clog if enough of it backs up and decided to come out all at once. And salads are another favorite of mine, but a nightmare for my stoma.

Since I've been mainly on a meat and grain based diet, in small portions, I haven't had much of any issues with my illeostmy. I drink a V8 or some fruit juice once in awhile.

Seafood is usually out of the question as well. Especially asparagus cause of the intense stink. Which I love Japanese food.

So it makes me wonder if humankind wasn't originally to eat vegetables or seafood. That we are tailored to eat grains and meats at first?

It might make sense as those items are mostly wild on the land and available, vegetables (to grow) and seafood (to catch) required more effort.

What do you think about this?

Does your diet concur with mine having an illeostmy?

Uh, I ate some creamed collard greens and paid the price for two days.

It didn't digest and clumped up, could have caused a clog.

Remember folks, fruit and vegetable juices only with an illeostmy.

Shamrock4806 wrote: 2024-08-28 08:48:54 Remember folks, fruit and vegetable juices only with an illeostmy.

Unless you have an ileostomy and can eat vegetables, fruit and pretty much everything. Don't presume that one digestive system is equal to another!!

NEskier wrote: 2024-08-28 11:43:04

Shamrock4806 wrote: 2024-08-28 08:48:54 Remember folks, fruit and vegetable juices only with an illeostmy.

Unless you have an ileostomy and can eat vegetables, fruit and pretty much everything. Don't presume that one digestive system is equal to another!!

Take a risk with a clog if you do.

I'll trust what the Academy of Nutrition and Dietetics has to say about the subject, they have been spot on with their information.

Far as putting on an otosmy bag that doesn't have issues seems to be a whole another situation.

Nobody knows diddly squat it seems.

I eat most of the things I want to. I live in Maryland so crab cakes are definitely a thing. If I have travel or other away-from-home plans coming up I change to more of a low residue diet to try to lessen the number of times I need to find a rest room. Sometimes it works, sometimes not.

I looked at the Academy of Nutrition & Dietetics site (eatright.org) and couldn't find anything aimed at people with ostomies...

I agree with NEskier - as I usually do - and danilynn....I eat fruits, veggies - cooked well - and fish....I can count food obstructions I have had after 50 plus years with less than the fingers of one hand....

Mara wrote: 2024-08-28 13:47:03 I looked at the Academy of Nutrition & Dietetics site (eatright.org) and couldn't find anything aimed at people with ostomies...

Yes unfortunately that information isn't presented online, likely to support those in the trade.

I partially pasted the diet information here on this thread from the PDF my dietician gave me.

viewtopic.php?p=230224#p230224

So far I've found it extremely accurate, and sure anything is cooked so it's near mush may work to pass through the system. It just seems to me that certain foods (meats and grain based, not corn though) seem to digest extremely well by the stomach alone. Why I have this theory based upon digest ability by the stomach alone.

Theory is wheat was eaten first, the animals that ate the wheat, root vegetables like potatoes and so fruit and so forth as those are land based..then as many became less of hunter/gatherers and more farmers, grew vegetables and finally seamen which caught fish.

Now the glaring issue is why not corn? Corn anything I eat does not digest in the stomach. What I suspect is corn came along later or like bananas, was cultivated into something else from it's original wild origins. So since this took effort it wasn't in the hunter/gatherers stage of humankind.

Anyway it's just a dumb theory.

"Remember folks, fruit and vegetable juices only with an illeostmy."

With respect, I've had my ileostomy for 50 years,since my teens. and for the last 30, I've eaten a mostly vegetarian diet. No food is "bad" in itself, and no class of foods is universally off-limits for people with ileostomies, but we do each have to find what works for own unique needs. I don't cook my food to mush, I often eat vegetables raw. I've had no problems with fruits and vegetables (even collard greens and celery), but some people do. It's important that peoples' challenges and successes are shared, both.
Shamrock, it does sound like you've had and are having some extremely frustrating and difficult experiences with food and managing leaks. I appreciate that you share these, as it's easy to forget that other people don't have the same experiences I've had. I've had a relatively easy time. I hope things get easier for you soon.

jstl wrote: 2024-08-29 05:22:37.
...Shamrock, it does sound like you've had and are having some extremely frustrating and difficult experiences with food and managing leaks. I appreciate that you share these, as it's easy to forget that other people don't have the same experiences I've had. I've had a relatively easy time. I hope things get easier for you soon.

Thanks, I think I've solved my otosmy bag issue, apparently I was given wrong advice about using a convex with my belly fold. What I need is a very flexible wafer instead of a very stiff one. So when I sit it doesn't pull itself off and leak.

What the issue I had was I didn't know what my problem was and outlined my issue but it seems nobody could relate so I had to slug out the answer myself as frustrating as it was.

Yes diet with an illeostmy has been an issue with me, made the mistake of having Cracker Barrel fried chicken last night and I suffered quite a bit all night with frequent toilet trips, one time the bag was at maximum capacity, but luckily for me with my diligence with my appliance application process it did not burst.

Perhaps over time you've accustomed yourself to eating just about anything, thus not having any issues.

Something to look forward for me, but right now I have to be very careful what I eat unless I want to suffer or risk a clog.

I've experimented with salmon and tuna (raw) and they seem to be fine, digest well and doesn't stink.

Perhaps it's just white based fish?

Your responses convinced me that possibly later on my body will adapt to be more accepting foods that otherwise cause an issue in one more earlier stages of an illeostmy.

I have edited my original post title to be a little less antagonistic, I was just hungry and looking for nutrition and my bag was hurting again.

I'm trying different things now, including using an antacid. I'm not happy when I'm in pain.

I just want a reliable system so I can go about my life.