ace questions....

jules^ · Post by **jules^** » 2007-04-10 07:41:12

some days hannah gets no mucous leaking out her ace site other days like today its kinda pouring out well maybe not pouring out but its markling her clothes and im forever wiping it ...all she keeps moaning is mummy its"smells" and she has a point its a bit wiffy.
im not worried bout it just wondering why it happens? i thought this ace malone valve thing they make ya was one way ie nothing should come out???

Eric E · Post by **Eric E** » 2007-04-10 09:49:39

Is this right after she irrigates or sometime later on in the day? I was always told it was a one way valve too! Though, for a bit after I take the tube out, some mucuous does make its way out. This is usually between pulling out and taking a shower, so within 15-20 minutes. So if its right after the cleaning, then I think it has to do with the tube stretching out the stoma. Need some more details...

Eric

jules^ · Post by **jules^** » 2007-04-10 13:22:57

yeah after the tube comes out some leaks but it seems to be at random times throughout the day , i had to change her lil dressing 3 times today as it was marked about an inch circle (if u get what i mean)

Rosemort2004 · Post by **Rosemort2004** » 2007-04-10 16:05:32

I tend to find that if Anna leaks at all it's cos she's not cleaned out properly. If she starts to block up a bit (which can still happen even when it seems to be coming out every day) then the pressure builds up enough to push stuff back out the stoma.
We do have the benefit of having ACE plugs, which are mainly to keep the stoma patent if you're having trouble with it tightening, but also help stop any minor leaks. If you want some more info about these email me privately, I can email a photo or send some to you if you want.

Cheers
Rosemary

jules^ · Post by **jules^** » 2007-04-11 15:58:34

hi rosemary,
we too have the ace plug stopper thingy for hannahs ace, its still leaking through it on to her dressing though quite alot , im gonna call her surgeon i think cause it doesnt look or smell right,....if any mucous can lol

Rosemort2004 · Post by **Rosemort2004** » 2007-04-12 00:07:19

How long has she had the ACE? They do seem to be a lot more leaky when they're newish. Then it seems to be pretty normal for a while till it all settles down.
Now though we only get leakage rarely, when somethings gone wrong and she's full. Oh and once when she ate a whole lot of plums! It came through still smelling like plums, though not ones you might want to eat , LOL!

Rosemary

Teen_KarlyP · Post by **Teen_KarlyP** » 2007-06-21 16:30:57

I've had the ace malone for more than a year (feb 2006)
I know the feeling about leaking. If it's right after the "flush" I have that too, and I'm guessing just about everyone does. But I've also noticed that if you keep it covered (band-aid, gauze, exc) that causes it to leak more. I'm not really sure why, it just happens that way for me. When I don't cover it, it will just come to the surface and kinda form a scab, and that happens everyday for me. I have to kinda peel away the scab before i can put the cath in again. Right after I had my malone done i had some issues with it closing up so i had to leave the cath in 24-7 before i had my revision. When I had that it would come back into the tube and sometimes the cap would come off and that caused a big mess. It would also come out around the opening due to the cath being taped to the side. AND i completely understand the smell thing. I'm not sure why but it has like a different, yet pretty bad smell.
If you have ne ? about my experince feel free to pm me.
KaRlY