UOAA Discussion Board

How many people here are from Minnesota with Indiana pouchs? Or How many people here from all walks of life have Indiana pouchs?

I have an Indiana Pouch. I have had it since January of this year.

I have had my Indiana pouch for just over one year (literally one year and one week) and live in Kansas City MO. I am a 37 yr old mother of two teenage girls with a wonderful supportive husband.

I have a version of an Indiana Pouch- mine is almost 16 years old and I live in Vermont .

18 months and counting here in Seattle!!!

I have had my indiana pouch for 5 yrs, and am having problems with it. would be very interested in hearing from others who have had this surgery. lynda

What kind of trouble are you haiving??

I decided to start a blog about the problems I am having. http://dosbambi.blogspot.com/ I have not finished writing , keep checking for more information there. I am glad I came across this board to be able to talk with others that have had this surgery. It is my intent that when others do a search for this information my blog will register and they will read it. I hope it will give valuable information to others.

I am 40 years old in Elyria Ohio. I have had Indy Pouch for 20 years. The first one done at University Hosp in Cleveland. 1 Stone removed, about 10 years ago. No major UTI's take Macrodantin 1 a day.

Hi I had my surgery 3/2/07 and I live on Long Island, New York. I am adjusting to my new normal. One day at a time. Sincerely, Ellen

I have had my pouch since Feb. of this year. i have done really well except for reoccuring infection. Don't quite know why those keep popping up. I am actually starting to feel like... should I say it? a normal person?
Eva

Hi, I'm from Trenton, SC and have had my IP since August 28 of this year! I'm still on medical leave. My biggest problem is diahrrea. It's killing me! Has anyone had any problems with this?

I lost my bladder in June of 2005 from cancer. God has taken good care of me and continues to take good care of all of us.

I'm originally from Indiana, but moved to south Florida in the past few years. I've had my IP since Nov 06. I had to go to Indiana to have the procedure. I'm loving it!

I have had my indiana Pouch for 21 years. I got it at University of Michigan Peds. Dr. David Bloom.
I live in Chicago now.
I cath about 4 times a day. I get a good amount of infections, but try to work through them. I have no insurance. I haven't had any insurance for 2 years now.

But I lOVE MY STOMA.
(I call it a rosebud)

jrickard wrote:Hi, I'm from Trenton, SC and have had my IP since August 28 of this year! I'm still on medical leave. My biggest problem is diahrrea. It's killing me! Has anyone had any problems with this?

I lost my bladder in June of 2005 from cancer. God has taken good care of me and continues to take good care of all of us.

Yeah, your still doing pretty good if you are on medical leave. I would be strapped up for months on bedrest alone. It takes time, but once everything is settled, life is pretty good.