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Mine is called 'Thorne'.
As a minister, I took it from a Bible passage where Paul talks about a 'thorn in the flesh'.
I read an article about naming my stoma on this site shortly after I got Thorne and thought it was a great idea.
Now I tell my wife I have to take care of Thorne and only her and I know what I'm talking about.
For Fun "what did you name your stoma" and why...
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RichieTheK
- Posts: 2
- Joined: 2018-03-17 12:30:28
Re: For Fun "what did you name your stoma" and why...
I named mine "Kuato", after the parasitic twin that led the resistance on Mars in the science fiction movie "Total Recall" (the 1990 version starring Arnold Schwarzenegger). The name just jumped into my head when I first got a good look at my stoma in the mirror.
Re: For Fun "what did you name your stoma" and why...
Never named my colostomy stoma. My ileo? Hmm, will think about it. Unfor, the wound where my previous colostomy (and hernia) was looks like a crater. That might be that's name. I think it'll always be quite indented. As far as the wound going down the center of my abdomen, I hope it'll be history. That sounds like a good name. I hope my ileo stoma decreases in size -- and I'll think about it. Btw, I no longer have a navel. No belly button. I had a MACE procedure made from my appendix -- a tube created of appendiceal tissue with a tiny stoma in my navel. GONE! I only realized that a few days ago!
Live and learn! Hmmm, on that note, I like the name Socrates! And it's near what will be a crater for better or worse!
Diane C
2000 MACE for chronic constipation due to dysfunctional anal muscles
2002 Colostomy
2018 Removal of Colon, Colostomy, MACE, Rectum; new ileostomy in place
Live and learn! Hmmm, on that note, I like the name Socrates! And it's near what will be a crater for better or worse!
Diane C
2000 MACE for chronic constipation due to dysfunctional anal muscles
2002 Colostomy
2018 Removal of Colon, Colostomy, MACE, Rectum; new ileostomy in place
Re: For Fun "what did you name your stoma" and why...
Diane:
The pins and needles sensation that you feel is likely more superficial sensory nerve endings that were injuried/traumatized by the surgery and now re-awakening and growing and making themselves known.
Sensory nerve endings will also invariably get caught in scar tissue and will signal their displeasure sometimes when you will move or otherwise place tension on the scar tissue.
I lost my navel/belly buttton, as well, with my surgeries. Those with a long, vertical incision often find that their navel/belly button is no longer.
Bed frames that go up/down are called “articulating bed frames.” I have an articulating frame with a Tempurpedic mattress, as a full-size mattress. I adore it. Well worth the expense.
Carnation Instant Breakfast is something I advocate and use myself. There is a sugar free version of Carnation Instant breakfast if you are concerned about simple carbohydrates. Lactose free milk is easily available for those with lactose intolerance.
For you in the here-and-now, focus less on particular ingredients and focus more on nourishing your mind, body, soul with foods that provide you with digestive comfort and that are palatable and tasteful. You can focus on any desired weight loss and strengthening/reconditioning in the months ahead.
I am amazed at your pain control with Tylenol only. The “opiate crisis” is changing how surgeons provide for post-operative pain control. I just hope that people do not suffer with misery.
It is difficult when someone comes into someone elses’s home to provide a deep cleaning, as your cousin provided for you. Consider the cleaning service as a refreshing “fresh start,” much as your surgery and ileostomy is a “fresh start.” I hope
for you only good things for the coming new year.
Keep up the good work, you are doing great,
Karen
The pins and needles sensation that you feel is likely more superficial sensory nerve endings that were injuried/traumatized by the surgery and now re-awakening and growing and making themselves known.
Sensory nerve endings will also invariably get caught in scar tissue and will signal their displeasure sometimes when you will move or otherwise place tension on the scar tissue.
I lost my navel/belly buttton, as well, with my surgeries. Those with a long, vertical incision often find that their navel/belly button is no longer.
Bed frames that go up/down are called “articulating bed frames.” I have an articulating frame with a Tempurpedic mattress, as a full-size mattress. I adore it. Well worth the expense.
Carnation Instant Breakfast is something I advocate and use myself. There is a sugar free version of Carnation Instant breakfast if you are concerned about simple carbohydrates. Lactose free milk is easily available for those with lactose intolerance.
For you in the here-and-now, focus less on particular ingredients and focus more on nourishing your mind, body, soul with foods that provide you with digestive comfort and that are palatable and tasteful. You can focus on any desired weight loss and strengthening/reconditioning in the months ahead.
I am amazed at your pain control with Tylenol only. The “opiate crisis” is changing how surgeons provide for post-operative pain control. I just hope that people do not suffer with misery.
It is difficult when someone comes into someone elses’s home to provide a deep cleaning, as your cousin provided for you. Consider the cleaning service as a refreshing “fresh start,” much as your surgery and ileostomy is a “fresh start.” I hope
for you only good things for the coming new year.
Keep up the good work, you are doing great,
Karen
Intestine perforation, sepsis, ileostomy, 2012
Addison’s disease + endocrine failure
Palliative Care
Addison’s disease + endocrine failure
Palliative Care
Re: For Fun "what did you name your stoma" and why...
Sandy/DUDE: Hilarious! Ha!
2nd time Ileo '08, IBD since '93, still lovin' life
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Mysticobra
- Posts: 685
- Joined: 2016-01-20 23:25:36
Re: For Fun "what did you name your stoma" and why...
Favorite movie.Sandywr wrote: 2018-12-01 00:08:56 My favorite movie, the big Lebowski. I named mine, THE DUDE, because he was always shit on.
Re: For Fun "what did you name your stoma" and why...
Karen,
Thanks for explaining the "pins and needles" sensation -- that makes a lot of sense. I figured it was part of the healing process and my stoma is getting smaller. I'm surprised I don't feel it at other wound sites but glad I do not. Not too heavenly! There's also a strong feeling like bruising below the stoma. The last few days, the pain under my stoma has been pretty intense but NOTHING like the pain I experienced in the hospital. I'm not into suffering but with that memory and since my surgical team told me that Tramadol could slow down my system and cause a blockage, yes, I'm just relying on Extra-Strength Tylenol -- and back to scheduling it every 6 hours. Odd that a few days ago, the pain seemed less. Again, just part of the healing process and since I don't have x-ray vision (which would indeed be very cool), I'm just observing, not judging, and going with it -- and having tea or resting when the pain goes up. By the time it's 8:30 pm, I am really wiped. And I think that's due to the pain.
And I feel as though I have so much to do which isn't a good feeling. The visiting nurse wants me to tell her what supplies I need by Monday and I have so many ostomy supplies now -- need to sort -- send some to FOW -- and there's so much paperwork after being gone. And much else with the year ending soon. You are 100% correct about the clean-out and sanitizing of my condo by the folks my cousin brought in. Plus, he is from NC and researched organizations -- and hired them -- alhough I ultimately paid. I'm trying to get over my frustration and admit it's not easy because every single day since they were in here (and keep in mind, I'd been working with an organizer on my own so the place was not a disaster but NOT clean -- and I'd had several irrigation accidents and the remnants of those are GONE) I look for something and it's "gone, girl." As I said, not the end of the earth -- and I do have to order some of these items again -- perhaps Friday or Saturday. Having some back again will make me feel better, esp as I need them.
Weight has always been an issue -- and even the "new" women's movement hasn't changed that. I went hog wild when I had the hernia and no clothes would fit and I stopped swing dancing out of embarrassment. You read words of anxiety, ambivalence, depression, and even anger. I'm enjoying losing the weight -- although at times, crave carbs (gluten/bread -- unsure I'll get the energy to bake the very ez corn bread and still have to find the mix as that was pitched for some weird reason) but seeing the number on the scale go down from 158 is delightful. Haven't weighed myself lately but am guessing I've lost about 15 lbs. I noted in my surgeon's reports (I must order that operative report as it's not on the portal and I'm curious) that he wrote that during every visit, he claimed he gave me guidance on losing weight. This is total fiction and I find it semi-laughable and sometimes plain aggravating. I certainly knew I was overweight (I'm sure anyone who once was anorexic would know this) and he gave me absolutely no "guidance" and never mentioned it until he told me that my hernia had increased and was encased in layers of fat. Perhaps that was a medical assessment, as it was repeated in reports about the surgery. In some way, knowing this and reading his words spurs me on. I want to fit in my clothes again, regain balance which has really suffered with my abdomen losing tone since 2000, get back in shape -- and it's going to take a lengthy time and effort. It's super important to me -- as much as wound healing is.
The most unusual activity is trying to finish dinner by 6:30 or 7 and then not ingesting more except liquids. I didn't live this way before and we'll see if it continues after recuperation. I'm not yet volunteering, attending theater, or going to swing dances that end at midnight and returning home hungry. So again, it's an experiment. After 2 nights of defecating almost constantly and waking up in stool (pulled out the puppy pads from my closet!), I just don't want that kind of sleep-deprivation again. It made pain and everything worse and I certainly wasted my time with the PT who came to my home. I was a zombie. I thought I'd be sleeping now -- but something woke me up -- and glad it did. Have switched from Convatec to Hollister. Sigh, the filter which seems far better placed is totally wet and soiled and non-functional with the pouch looking like a balloon. Today, I received Coloplast samples and the filter seems in the perfect place... so hoping THAT will work better. This is obviously something I'll have to get used to -- and also do something about the ongoing gas. Maybe go back on Gas-X? (The major gas I had after surgery is gone.) Today the nurse who visited remarked on how much less distended I was and that the stoma looked smaller. GOOD!
Eating much protein and need to buy more tomorrow. Had a balanced dinner today with a small serving of cooked string beans and non-gluten noodles -- without sauce. Hydration feels great and I'm actually enjoying the water and tea. I mentioned a while ago that a product called Cirkul (it was a start-up) provides an easy way to drink water with various flavorings you use with your own filtered water. https://drinkcirkul.com/ They've added tea flavors -- some sweetened with sucralose (I know this can cause diarrhea but the amount is small) or stevia and some without any sweeteners-- and if getting enough water down is hard, this makes it MUCH easier -- although I'm really thirsty these days and never drank so much water. Nice to pee and not see that deep, intense yellow!
I'm going to Google "articulating bed frame" because more and more, I'd really enjoy that kind of bed. Will check out prices. I haven't driven since 10/31 but have been starting my car frequently due to the cold. Hmmm, there is a very strong odor of gas (from a car, not a gut) so I hope to get my car and the engine checked out Friday. I've a 2005 Toyota and they last a long time. Buying a car wasn't in my plans but that would come before a new bed if necessary. Will learn more tomorrow or Saturday, I hope. I also feel I can drive on short errands now -- if I am not in pain (the Extra-Strength Tylenol kicks in after about an hour) and with my special pillow on the car seat.
Do wish the wound in the rear would heal a bit faster. Continues to bleed (the others are not) and am using this silver Aquacel dressing which seems useless. I see the surgeon on Tuesday but have a sense he'll say all is going as it should and just keep going. I brought up the issue of silver and he pounced on that. Wish I had another idea. Some have said to have Vit. C, and zinc is also healing. Finally back on supplements and L-Glutamine continues to make my digestive system feel better.
Was unaware that many with vertical sutures lose their belly buttons. Aw, mine served such a great purpose with the MACE -- I was actually sorry to see it gone. Well, here's to newness -- in my condo and body. Many thanks, Karen, for your encouragement. It means a lot. Time to take my next Extra-Strength Tylenol and try to get some zzzzz.
G'nite (or good morning), all!
Diane C
Thanks for explaining the "pins and needles" sensation -- that makes a lot of sense. I figured it was part of the healing process and my stoma is getting smaller. I'm surprised I don't feel it at other wound sites but glad I do not. Not too heavenly! There's also a strong feeling like bruising below the stoma. The last few days, the pain under my stoma has been pretty intense but NOTHING like the pain I experienced in the hospital. I'm not into suffering but with that memory and since my surgical team told me that Tramadol could slow down my system and cause a blockage, yes, I'm just relying on Extra-Strength Tylenol -- and back to scheduling it every 6 hours. Odd that a few days ago, the pain seemed less. Again, just part of the healing process and since I don't have x-ray vision (which would indeed be very cool), I'm just observing, not judging, and going with it -- and having tea or resting when the pain goes up. By the time it's 8:30 pm, I am really wiped. And I think that's due to the pain.
And I feel as though I have so much to do which isn't a good feeling. The visiting nurse wants me to tell her what supplies I need by Monday and I have so many ostomy supplies now -- need to sort -- send some to FOW -- and there's so much paperwork after being gone. And much else with the year ending soon. You are 100% correct about the clean-out and sanitizing of my condo by the folks my cousin brought in. Plus, he is from NC and researched organizations -- and hired them -- alhough I ultimately paid. I'm trying to get over my frustration and admit it's not easy because every single day since they were in here (and keep in mind, I'd been working with an organizer on my own so the place was not a disaster but NOT clean -- and I'd had several irrigation accidents and the remnants of those are GONE) I look for something and it's "gone, girl." As I said, not the end of the earth -- and I do have to order some of these items again -- perhaps Friday or Saturday. Having some back again will make me feel better, esp as I need them.
Weight has always been an issue -- and even the "new" women's movement hasn't changed that. I went hog wild when I had the hernia and no clothes would fit and I stopped swing dancing out of embarrassment. You read words of anxiety, ambivalence, depression, and even anger. I'm enjoying losing the weight -- although at times, crave carbs (gluten/bread -- unsure I'll get the energy to bake the very ez corn bread and still have to find the mix as that was pitched for some weird reason) but seeing the number on the scale go down from 158 is delightful. Haven't weighed myself lately but am guessing I've lost about 15 lbs. I noted in my surgeon's reports (I must order that operative report as it's not on the portal and I'm curious) that he wrote that during every visit, he claimed he gave me guidance on losing weight. This is total fiction and I find it semi-laughable and sometimes plain aggravating. I certainly knew I was overweight (I'm sure anyone who once was anorexic would know this) and he gave me absolutely no "guidance" and never mentioned it until he told me that my hernia had increased and was encased in layers of fat. Perhaps that was a medical assessment, as it was repeated in reports about the surgery. In some way, knowing this and reading his words spurs me on. I want to fit in my clothes again, regain balance which has really suffered with my abdomen losing tone since 2000, get back in shape -- and it's going to take a lengthy time and effort. It's super important to me -- as much as wound healing is.
The most unusual activity is trying to finish dinner by 6:30 or 7 and then not ingesting more except liquids. I didn't live this way before and we'll see if it continues after recuperation. I'm not yet volunteering, attending theater, or going to swing dances that end at midnight and returning home hungry. So again, it's an experiment. After 2 nights of defecating almost constantly and waking up in stool (pulled out the puppy pads from my closet!), I just don't want that kind of sleep-deprivation again. It made pain and everything worse and I certainly wasted my time with the PT who came to my home. I was a zombie. I thought I'd be sleeping now -- but something woke me up -- and glad it did. Have switched from Convatec to Hollister. Sigh, the filter which seems far better placed is totally wet and soiled and non-functional with the pouch looking like a balloon. Today, I received Coloplast samples and the filter seems in the perfect place... so hoping THAT will work better. This is obviously something I'll have to get used to -- and also do something about the ongoing gas. Maybe go back on Gas-X? (The major gas I had after surgery is gone.) Today the nurse who visited remarked on how much less distended I was and that the stoma looked smaller. GOOD!
Eating much protein and need to buy more tomorrow. Had a balanced dinner today with a small serving of cooked string beans and non-gluten noodles -- without sauce. Hydration feels great and I'm actually enjoying the water and tea. I mentioned a while ago that a product called Cirkul (it was a start-up) provides an easy way to drink water with various flavorings you use with your own filtered water. https://drinkcirkul.com/ They've added tea flavors -- some sweetened with sucralose (I know this can cause diarrhea but the amount is small) or stevia and some without any sweeteners-- and if getting enough water down is hard, this makes it MUCH easier -- although I'm really thirsty these days and never drank so much water. Nice to pee and not see that deep, intense yellow!
I'm going to Google "articulating bed frame" because more and more, I'd really enjoy that kind of bed. Will check out prices. I haven't driven since 10/31 but have been starting my car frequently due to the cold. Hmmm, there is a very strong odor of gas (from a car, not a gut) so I hope to get my car and the engine checked out Friday. I've a 2005 Toyota and they last a long time. Buying a car wasn't in my plans but that would come before a new bed if necessary. Will learn more tomorrow or Saturday, I hope. I also feel I can drive on short errands now -- if I am not in pain (the Extra-Strength Tylenol kicks in after about an hour) and with my special pillow on the car seat.
Do wish the wound in the rear would heal a bit faster. Continues to bleed (the others are not) and am using this silver Aquacel dressing which seems useless. I see the surgeon on Tuesday but have a sense he'll say all is going as it should and just keep going. I brought up the issue of silver and he pounced on that. Wish I had another idea. Some have said to have Vit. C, and zinc is also healing. Finally back on supplements and L-Glutamine continues to make my digestive system feel better.
Was unaware that many with vertical sutures lose their belly buttons. Aw, mine served such a great purpose with the MACE -- I was actually sorry to see it gone. Well, here's to newness -- in my condo and body. Many thanks, Karen, for your encouragement. It means a lot. Time to take my next Extra-Strength Tylenol and try to get some zzzzz.
G'nite (or good morning), all!
Diane C
Re: For Fun "what did you name your stoma" and why...
My Stoma nurse came in the day after my surgery to show me how to change my bag. She asked me if I had named it yet. Doing research before I had surgery I had seen this post and told my wife I should name it Trump since he is such an...well you know . Anyways my wife along with my kids were in the room and I had mentioned it to them awhile back. I look over at them and we all kind of giggle.I wasn’t sure if I should let her in on the joke but I told her. She couldn’t stop laughing and said from now on every time she sees one she will think of him.
Re: For Fun "what did you name your stoma" and why...
Politics is out on this board but -- ohhhh, I could not possibly name my stoma after 45. After all, it's red, not orange, Pokerpro! 
Diane C
Diane C
Re: For Fun "what did you name your stoma" and why...
My best friend has called me "Lucy" all of my life, so "Ethel" seemed the perfect match! She is always with me!!!
Re: For Fun "what did you name your stoma" and why...
I call my stoma "Stella" that way when I have an issue I can yell "Stella!!!" 
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bushranger
- Posts: 3
- Joined: 2019-02-01 22:25:52
Re: For Fun "what did you name your stoma" and why...
Felix, after Felix the Cat cartoon. Because I have to carry its bag of tricks with me everywhere I go.
Re: For Fun "what did you name your stoma" and why...
As a new ostomate and after reading this discussion topic I had to come up with a name and one night I landed on the name “The Donald” and I will leave it to the reader to imagine the why.
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Mysticobra
- Posts: 685
- Joined: 2016-01-20 23:25:36
Re: For Fun "what did you name your stoma" and why...
Jeez.
Now you guys got me thinking about it.
First off was.
Cherry Bomb!
Looks like a cherry. And bombs me during changing sometimes.
Still. I'm thinkin about it.
I didn't like it at first. So I wasn't go a name the thing.
Now. It's my best alteration. Never thought I'd be saying that.
I'll come up with something.
Rawhide? Lol.
Batman?
Little sh*t?
Lol.
No political names. I wouldn't give it a name politically. Too much of an honor. They don't deserve it. And mine spews less poop than 45!
Richard.
Now you guys got me thinking about it.
First off was.
Cherry Bomb!
Looks like a cherry. And bombs me during changing sometimes.
Still. I'm thinkin about it.
I didn't like it at first. So I wasn't go a name the thing.
Now. It's my best alteration. Never thought I'd be saying that.
I'll come up with something.
Rawhide? Lol.
Batman?
Little sh*t?
Lol.
No political names. I wouldn't give it a name politically. Too much of an honor. They don't deserve it. And mine spews less poop than 45!
Richard.
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dogtalkerer
- Posts: 279
- Joined: 2008-11-03 07:31:09
Re: For Fun "what did you name your stoma" and why...
after 11 yrs of no names, its name is IT. i told a new girlfriend, if IT farts, it wasn't me, it was IT that farted. because I will not fart in front of a girl, old school I guess.