Lilygirl,
Regarding the UOA archives, if you were reading my messages on the old UOA discussion board, you'd know that I wanted very much to preserve those archives. The decision
not to preserve them (but, instead, destroy them on Sept 30) was made first by the UOA Editorial Board and then ratified by the full UOA Board of Directors. I didn't belong to either of those bodies, so couldn't participate in their deliberations. I did attend the final, public Board of Directors meeting at the UOA Conference in Anaheim, where we convinced them to reconsider their decision. But the result was disappointing, as all but one of the Board members present voted to reconfirm their earlier decision
not to release the archives.
UOA's stated reason was a privacy issue: They claimed that people who posted on the UOA discussion boards were posting specifically to the UOA site and hadn't given permission to have their comments appear elsewhere. I disagreed with their reasoning; however, I had no choice but to abide by their decision. As Steve wrote, the contents of the UOA website were UOA's property--not mine personally. So, I couldn't copy the UOA discussion archives to this UOAA site (or elsewhere), much as I would have liked to.
Lilygirl, your comments about "virtual library" suggest a misconception--as if websites exist in a virtual never-neverland independently from the people who operate and provide those sites. Every website needs people to run it and actually
pay money to keep the site on the Internet. (And even when a site includes a discussion board, that board is owned by the people who provide the website, not by the discussion board users.) In the case of UOA, a decision was made to pay enough for web hosting to keep the UOA site online for a period of one year past the organization's shutdown date (thus, until Sept 30, 2006). However, it will be only a
static site, without any interactive content, to minimize the need for maintenance (and because UOA no longer has any personnel to respond to inquiries). Also, while the UOA site will remain online for only one year, steps have been taken to protect the uoa.org domain name for a period of five years, to block any third party from starting up a website using that domain name.
The overall amount of information on the Internet is continually increasing. However, much of that information is also quite ephemeral, as individual websites blink out all the time. Generally, websites provided by an organization (such as UOA or UOAA) are more stable than sites produced by a single individual. But organizations sometimes go belly up, as has happened to UOA.
I'd like to think that UOAA, and this UOAA website, will stay around for many years. But this depends on how successful UOAA will be, which is far from certain. UOAA is affected by many of the same pressures that caused the demise of UOA, such as the decreasing number of ostomy surgeries. UOAA hopes to succeed by adopting a model that doesn't depend on individual memberships and by avoiding UOA's most costly activities. But noone knows yet how well this will work out.
If you'd like this website to stay around, then you--and everyone else reading this message--should do what you can to make UOAA successful. The
most important thing you can do, if you haven't already, is
subscribe to The Phoenix magazine. Subscriptions cost only $25. I'm sure it will be a great magazine, as it's being produced by Ian Settlemire who was also UOA's Ostomy Quarterly editor. And right now, these magazine subscriptions are UOAA's only source of revenue!
Another important thing you can do is
help us acquire affiliated support groups. To succeed, UOAA will need affiliations from basically all of the former UOA chapters as well as many groups that were never affiliated with UOA at all. (And, currently, affiliation is FREE, as UOAA will not begin charging any affiliation fees until January 2007.) So far, as you can see on our
Support Group page, only a small number of the former UOA chapters have affiliated with UOAA. Most of the former UOA chapters are probably somewhat skeptical and haven't decided yet whether to join our new national organization. If you belong to such a group, or know anyone in such a group, then
please urge them to
affiliate with UOAA.
Bob