Okay, I've resorted to using construction glue

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Shamrock4806
Posts: 451
Joined: 2024-02-22 13:00:22

Re: Okay, I've resorted to using construction glue

Post by Shamrock4806 »

Mysticobra wrote: 2024-08-27 18:07:37 Shamrock.
How long have you had your end ileo?
Not critical of what you do. But you go to great length to put an appliance on.
Just wondering.
Richard.
Since Sept of last year 2023.

I've always had a problem with sitting up or sitting causing issues and leaks. It's because the wafer is not flexible.

Now that I see I don't need a convex this opens up a lot of options for me.

I also finally started using a anti-bacterial dish soap in my used mouthwash bottles with water to rinse the bag. This has been very effective in killing bacteria lingering in the bag that feeds on the output producing a very foul odor that even Ozium and Poo Pouri isn't as effective any more.

So I slowly grind on. 🙄

I think though that perhaps I've stumbled upon an entirely new method of appliance application that is significantly better than current products. We will see how long my new contraption lasts. 😊

With that protective sheet down, I can basically do anything I want on top of it. My mind is reeling with the possibilities.
I get knocked down, but I get up again
You're never gonna keep me down...
Old_guy
Posts: 7
Joined: 2024-08-25 10:52:12

Re: Okay, I've resorted to using construction glue

Post by Old_guy »

A new guy here...

There are some replies and suggestions, but I don't know any context in all of your situations. @Shamrock4806 kindly replied to me earlier and stated their belly situation is similar to my wife's, as she has a crease to deal with.

Is there anyone else dealing with a similar situation? I look at online videos and all have flat bellies. That doesn't help me much.
Mysticobra
Posts: 685
Joined: 2016-01-20 23:25:36

Re: Okay, I've resorted to using construction glue

Post by Mysticobra »

I think we all have the crease. Scar.
Just have to find the right product that works for her.
My stoma sticks out a good inch plus. If she has a recessed stoma those are a problem.
The crease is something we all have to deal with. Unless your stomach is flat.
Mine isn't. It's the only place I've put on weight where it shows.
But as I said in previous posts all I use is a ring and put the wafer on over the ring.
I found in my case paste is useless. It will leak. So I went to a ring and I can usually get seven days. Not everytime.
Keep trying.
I use convetec wafers. They seem the most flexible. Coloplast seemed too hard.
I hear the sensura mio is very flexible. I tried to apply one a long time ago. But they are thin and sticky. If I could get one on I think they would wow good.
I just have a large supply of convetec and have to use them.
Keep in mind. Less is best. The less product you can use the better.
Richard.
Shamrock4806
Posts: 451
Joined: 2024-02-22 13:00:22

Re: Okay, I've resorted to using construction glue

Post by Shamrock4806 »

Thanks Richard!

I think someone (paid unfortunately) told me I needed a convex for the near flush stoma. But with my thorough thin paste + sheet method it protects the skin good that the stoma doesn't need to pop out as much as before.

After a day driving, much much less stress around the stoma than before.

I think I nailed it. 😁

Belly folds are tough, the appliances come rigid.

By cutting a HUGE hole in the wafer, it only allows a thinner ring around the outside which is a lot more flexible. So now the wafer remains folded somewhat and fits snug in the belly fold.

Now I have a better idea what to shop for.

I'm using the sensura mia convex and yes it's stiff as a board. Why I gutted it. 😊
I get knocked down, but I get up again
You're never gonna keep me down...
Old_guy
Posts: 7
Joined: 2024-08-25 10:52:12

Re: Okay, I've resorted to using construction glue

Post by Old_guy »

So, once I put on a ring and a one piece bag, the stoma is just sticking out above the bag plate. I'm thinking of trying a convex system. Good idea to try? I figure some companies will send samples. But one sample seems insufficient to test out.
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Mara
Posts: 1395
Joined: 2005-09-30 22:13:16

Re: Okay, I've resorted to using construction glue

Post by Mara »

A convex system might help. Also after surgery usually the size of the stoma changes along with the healing process. When you call for samples, tell them your wife just had surgery and you need a few items to try out....
Does your hospital not have an ET - enterostomal nurse - maybe this website will help.....
https://www.wocn.org/learning-center/pa ... d-a-nurse/
Ileostomy due to UC - 50 odd years
Shamrock4806
Posts: 451
Joined: 2024-02-22 13:00:22

Re: Okay, I've resorted to using construction glue

Post by Shamrock4806 »

Old_guy wrote: 2024-08-28 21:32:23 So, once I put on a ring and a one piece bag, the stoma is just sticking out above the bag plate. I'm thinking of trying a convex system. Good idea to try? I figure some companies will send samples. But one sample seems insufficient to test out.
You don't need a convex system if your stoma is sticking out above the skin surface all on its own. That's what the convex does it (along with a belt) places downward pressure around the stoma to get it to push itself out and spew on top of the ring or paste and into the bag. The stoma can extend itself out, why it's so important to cut a (slightly) bigger hole in the wafer so it can extend into it. If too small of a hole or one that is misaligned, the stoma will push the wafer section off and cause leaks.

I've found out (recently here) that with a belly fold and a convex is not the way to go (unless I want to lay flat all day). However I have a near flush stoma, so it's out a little bit. Thin rings or a thin coating of paste works for me. A thicker ring can be used but one has to make it slightly larger than the stoma and press so the heat of the fingers melts it a little so it will mold thinner as one presses closer to cover the skin next to the stoma.

I use paste because I'm still suffering from leaks caused by the stiff convex (wrongly advised by a professional) with a belly fold, so I have skin damage which with paste I can better ensure it's sticking to the damaged skin and remove sections of it if it's not and redo. With a ring it's more ideal if the skin around the stoma is healthy and flat, no bumps or damage, it's much faster and easier than paste as long as one gets it on right the first time.

So with a belly fold and entirely different wafer is needed, one that flexible so that it can bend with body changes like sitting and laying flat or standing. Stiff wafers seem to be better for standing or laying down (or for convex purposes) only or with those with a flat belly that doesn't create a belly fold right where the stoma is when they sit or bend over.


I'm doing something very different myself, I use a thin level of paste around the stoma and ensure it's sticking well to protect the skin. (I will likely move to using a thin ring when the skin is finally healed and my leaks have stopped.) Then I place a precut protective sheet in top of that which is flexible and absorbs moisture (from the skin) and thus adheres very well. I coat the protective sheet with paste within the hole area as to protect it from output. Then I'm cutting a huge 60 mm hole in my convex wafer basically to get rid of it's stiff convex part and turn it into a bag almost. I'm folding the gutted convex horizontally and heating it so it stays bent about 22.5 degrees. Then pasting it on with a ring of paste around the hole edge to seal contents in. So I'm using the protective sheet as a wafer and the remaining portion of the gutted convex as a pouch. I apply my belt and the system stays snug in my belly fold now.

It's extreme and there are other products that have flexible wafers already and if you have a belly fold this is where I would look at. Using a ring or paste depends upon the condition of the skin surrounding the stoma. If uneven or has damage, then in my experience paste is better provided it's properly applied and the right kind. Not all pastes are the same. Some have alcohol in it and stings, some people are allergic to it. There is very sticky no sting paste and that's what I use. It's more costly but I only use a thin amount. For huge amounts on top of the protective sheet (not touching the skin) I use the cheaper alcohol based paste.

So this is my current situation trying to use up my wrongly advised product by modifying it before finding something that fits my needs better. Or invent something myself as I can basically do anything on top of that protective sheet really. I'm just needing to remove output, the skin protection issue is solved.

FYI I've had my illeostmy since Sept 2023, I'm still learning and I've found the only ones with enough experience doing this are not the professionals, but ordinary people that use this stuff daily and have to out of necessity solve their own problems.

My apologies if I'm very verbose, but you can take time to review things later and come up to speed quickly that just a quick response that might not be your real solution. You need to understand how this all works because we are all our own educators. You could hire someone but those that have worked on every sort of patient body type and can instantly tailor something to your needs the first time are extremely rare, there may be just one really good expert in any hospital and they get paid well. Something a home nurse isn't always as capable. Many don't like doing wound care neither according to what I've been told by them.

So take your time and read, learn all you can online. It's a lot to take in and there isn't any easy answers. But I'm trying. 😊
I get knocked down, but I get up again
You're never gonna keep me down...
Mysticobra
Posts: 685
Joined: 2016-01-20 23:25:36

Re: Okay, I've resorted to using construction glue

Post by Mysticobra »

Shamrock.
What wafers are you using?
Brand?
I use convetec "moldable". I also have them precut now.
You may have to wait until your fully healed to get precut wafers.
You have to heal fully.
But I have tried alot of different wafers.
Convetec moldable works best for me.
Sittin.
Standing.
Bending.
It's the most flexible I found that works for me.
If your not using it ask for a sample.
As you probably know. All companies will send a sample.
Richard.
Shamrock4806
Posts: 451
Joined: 2024-02-22 13:00:22

Re: Okay, I've resorted to using construction glue

Post by Shamrock4806 »

Mysticobra wrote: 2024-08-29 12:51:51 Shamrock.
What wafers are you using?
Brand?
I use convetec "moldable". I also have them precut now.
You may have to wait until your fully healed to get precut wafers.
You have to heal fully.
But I have tried alot of different wafers.
Convetec moldable works best for me.
Sittin.
Standing.
Bending.
It's the most flexible I found that works for me.
If your not using it ask for a sample.
As you probably know. All companies will send a sample.
Richard.
Thanks Richard, I think that's what I need. I'll take a look online. (Coloplast sensura mio convex one piece)

It was just for such a long time I trusted professionals to advise me, but unfortunately they were dead wrong.

Day two of my new contraption and the damaged skin is sore still, healing up, but no irritation or burning, thus no leaks. I've been sitting and driving just fine.

I'm so happy I'm almost crying. Seriously. I've been suffering for several months with this.

Thanks and I apologize for being so irritated here. 😢
I get knocked down, but I get up again
You're never gonna keep me down...
Mysticobra
Posts: 685
Joined: 2016-01-20 23:25:36

Re: Okay, I've resorted to using construction glue

Post by Mysticobra »

Do you have a permanent ileo or a temporary?
I admit I haven't read everything.
I use a two piece as I can center the wafer better.
I use opague bags and can't see through them to center the wafer properly.
R.
Shamrock4806
Posts: 451
Joined: 2024-02-22 13:00:22

Re: Okay, I've resorted to using construction glue

Post by Shamrock4806 »

Mysticobra wrote: 2024-08-30 09:57:47 Do you have a permanent ileo or a temporary?
I admit I haven't read everything.
I use a two piece as I can center the wafer better.
I use opague bags and can't see through them to center the wafer properly.
R.
It can be temporary provided I'm cured of my cancer first. I quite frankly don't want to do any more surgery.

And reversing a illeostmy has issues of its own because diapers are needed until the colon kicks back in, which could take a year or so.

Id rather have my poop in a bag instead on my arse all the time. 😆

Also with a one piece all one has to do is cut it properly (a bit larger than the stoma) and line up the bottom first then the rest will follow, why there is a measuring tool in the box. I use opaque bags also just to see what I'm eating is being processed properly.
Last edited by Shamrock4806 on 2024-08-31 07:59:23, edited 1 time in total.
I get knocked down, but I get up again
You're never gonna keep me down...
Shamrock4806
Posts: 451
Joined: 2024-02-22 13:00:22

Re: Okay, I've resorted to using construction glue

Post by Shamrock4806 »

Okay day three of my modified contraption and just getting mild irritation around the stoma where the skin was previously damaged. It's more itchy than irritating, a little rubbing seems to help. I'll know the whole story when I remove it later today.

I do notice if one has damaged skin that more frequent wafer replacements are needed to address the skin healing and thus shedding off it's upper layer where the paste is attached, something to keep in mind. Likely why I'm itching a slight bit under there now.

I've been driving heavily, thus tired and unfortunately woke up twice during the night on two occasions with a completely full bag to bursting point and it held like a champ. 😁

So I think I've found a winning combination, now to try to address frequent bag dumps. 🙄

I'm thinking of a extended canister that straps to the front of my right leg.
I get knocked down, but I get up again
You're never gonna keep me down...
Mysticobra
Posts: 685
Joined: 2016-01-20 23:25:36

Re: Okay, I've resorted to using construction glue

Post by Mysticobra »

Shamrock. (I don't know your real name)
Opaque bags are ones you can't see through.
I personally don't want to see what's in there.
I know and can see when I empty.
I get you have a temp ileo.
Notoriously hard to handle and not leak.
You said you don't want to have more surgery.
What will too do? I don't think. In my mind. Keep a temporary ileo forever.
I had one a short time. It was a nightmare.
I have a permanent now. Easy.
And yes. It's a gamble getting hooked back up.
I had a freind who was hooked back up after a temporary iloe after a cancerous section was removed. Everyone is different. But his was just never right after.
I haven't seen him in years so I don't know why he did.
I would hope it all goes well for you if you do go back.
These diseases concerning the colon are no joke.
I hope you find you answer. And you can move in with your like not centered around it.
Richard.
Shamrock4806
Posts: 451
Joined: 2024-02-22 13:00:22

Re: Okay, I've resorted to using construction glue

Post by Shamrock4806 »

Okay replaced the contraption today with another one just like it.

The bottom damage has healed partially but the top damage extended in a pointed fashion upwards indicates that those two full bag issues caused it

I may have to set nightly alarms to ensure this doesn't happen again
I get knocked down, but I get up again
You're never gonna keep me down...
Shamrock4806
Posts: 451
Joined: 2024-02-22 13:00:22

Re: Okay, I've resorted to using construction glue

Post by Shamrock4806 »

Bag didn't hold because I was in a hotel and no power outlets near the bed to use the blow dryer longer.

I got some iodine as recommended here and used it bit by bit (as it stings) until damaged skin covered, then dried well and then skin protectant then dried well again, paste held on good. No stoma powder as the iodine seemed to dry out the damaged skin well.

Thanks for that recommendation!

It did sting for a little while but finally went away, wear as the alcohol paste stung as long as it was on.

I used scar healing lotion on scar tissue, hopefully that will help with the itching, still covered it with a bit of petroleum jelly to prevent the adhesive from sticking to it.

I also skipped dinner and drove less, took a nap as to avoid a overfill bag issue during the night. So hopefully that will fix my current leak issues.

I think I got a good contraption on this time. 😁

Clue: if it's stinging, even a little bit, you want to rub it, it's a leak, just replace it. A good bag one feels nothing usually and just goes about their business.

I'm on the road quite a bit of my day, so longevity and being pain free is a big factor for me.
I get knocked down, but I get up again
You're never gonna keep me down...
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