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1. Hernia prevention - I am at a very high risk for developing a hernia due to Ehlers Danlos Syndrome. I want to do everything I can to prevent one. I will be religious about not lifting more than 10 lbs the first 6 weeks and doing abdominal strengthening after that. I plan to wear a binder/belt any time I am up and moving. But I am finding it challenging to know which binders precisely will support hernia prevention, both now and when I return to activities (like in the long-term maybe hiking, jogging, swimming, don't think I'll dare with rock climbing but we'll see). I see the NuHope brands and Stealthbelt, I use Coloplast so they have a binder too. But can anyone clarify what specific element I need for hernia prevention as they all seem to function in their own ways? Some hold the flange, some just plaster everything to the body, some hold up the bag, etc.
2. Blockage prevention - Because I am at a high risk of herniation, my surgeon opted to make my incision the stoma is pulled through and the stoma itself as small as possible. With an ileostomy, we are already at an increased risk of blockage and as I write this from the hospital (6 days post-op), my small opening is already causing havoc as it's swelled shut repeatedly and needed intubation. Thus, I am terrified of further blockage upon discharge or later intestinal obstruction elsewhere from adhesions. I know to chew thoroughly, eat small meals, stick to low-residue/low-fiber for 6 more weeks, and what signs to look for in blockage. But I'm still scared and will take any further tips for prevention and/or how you keep a level head + what you do when you think you have a blockage.
3. Mucus build-up - I was pretty unable to get anything out of my rectum before surgery, hence surgery. This included diarrhea from enemas. I'm seeing posts about mucus build-up and the inability to get that out causing further issues. I think I'm already experiencing this and of course don't want to strain to try to get anything out. What should I be thinking about now early on and asking my doctors to address this up front?
And honestly any other words of comfort or wisdom you have will be so appreciated. I am scared and feel alone in this new process often. How did and do you get through it? I want to trust in the long run this will bring my life to a functional place but this very moment is still hard. Leaning on your strength for now.
Many thanks all. I look forward to contributing to the community!