Traveling
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Traveling
Four weeks out from colostomy surgery. I’ve had a few leaks and am still trying to get the perfect method to attach wafer. So I need to figure out how to deal with carrying supplies around. Do you carry around a spare bags and trash bag everywhere you go? Do you carry extra wafers and remover and seals everywhere you go? I was thinking I just need a spare bag for everyday then the rest for extended travel but wanted to hear how everyone else does it.
Re: Traveling
I keep about 4 extra ostomy bags in my car when I need to change on the go. They consist of an ostomy bag, plastic zip lock bag and a small brown lunch bag. When traveling by air, I keep a 3-4 days of supplies with me on the plane, just in case my luggage does not make it. I have a piece of luggage that I can put under the seat that will hold my supplies and a few other personal items. When traveling by air, I always have a 3 day extra supplies, just in case who knows what might happen
I have 5' X 7' zip pouch that I will take along if I'm going out of town for the day, or traveling in someone's else car for an extended period of time. Inside of it, I keep a wafer, a few bags and any supplies I may need in case I blow a wafer on the go. I have not had that happen (blow out on the go, but I do worry about it happening). I got this pouch at Walgreen's years ago where they sale small travel items. Not sure if they sell them anymore.
I also have a blue card that I keep with my auto supplies or especially when traveling by air, that says I need to use the restroom now. It's a Traveler's Communication Card that I believe I got off this forum years ago. Nothing like having a lot of output, but until the captain turns of the seat belt light, I'm suppose to stay seated. That says I need to use the bathroom regardless. If you don't have one of those cards, get one. Let us know if you can't find it around here.
There is a learning curve in the beginning. I remember having a few blow outs, once was at a restaurant, that one taught me to be prepared. If I have a blow out now, I know it's because I did something wrong.
Hope this helped,
Nickolas
I have 5' X 7' zip pouch that I will take along if I'm going out of town for the day, or traveling in someone's else car for an extended period of time. Inside of it, I keep a wafer, a few bags and any supplies I may need in case I blow a wafer on the go. I have not had that happen (blow out on the go, but I do worry about it happening). I got this pouch at Walgreen's years ago where they sale small travel items. Not sure if they sell them anymore.
I also have a blue card that I keep with my auto supplies or especially when traveling by air, that says I need to use the restroom now. It's a Traveler's Communication Card that I believe I got off this forum years ago. Nothing like having a lot of output, but until the captain turns of the seat belt light, I'm suppose to stay seated. That says I need to use the bathroom regardless. If you don't have one of those cards, get one. Let us know if you can't find it around here.
There is a learning curve in the beginning. I remember having a few blow outs, once was at a restaurant, that one taught me to be prepared. If I have a blow out now, I know it's because I did something wrong.
Hope this helped,
Nickolas
rectal cancer 2004
stage IIIC
permanent colostomy
NED 15yrs and counting
stage IIIC
permanent colostomy
NED 15yrs and counting
Re: Traveling
Regarding leaks, Walgreen's has this wonderful Nexcare First Aid Tape that is waterproof. I keep some with me at all times. I generally wear my wafer for a week during the winter months, and about 5 days during the summer months. Sometimes I pushed that wafer to the limit. If I get a leak, I put that tape over the leak and I'm good for several hours. This is not to be confused with a blow out. If i have a leak at night, I put that tape on and change wafer in the morning. If I have a blow at night, it requires my attention. This generally happens if I am sleeping on my stomach and I just happen to have output. No place to go except out the side, blowoutl
Nickolas
Nickolas
rectal cancer 2004
stage IIIC
permanent colostomy
NED 15yrs and counting
stage IIIC
permanent colostomy
NED 15yrs and counting
Re: Traveling
I have a colostomy. We drive cross country, often, and try to never fly. Whether it be on a cross country or cross town trip I carry a kit of extra pouches and disposal bags. I use nothing but disposable pouches. I keep one of these kits in each of our cars. I also carry a kit in my golf bag. If we are going someplace with other people, and they are driving, I carry an extra pouch and disposal bag in my pocket. Prepared like this, no worries.
Re: Traveling
Thanks, this helps a lot. My stoma is very flat and I haven’t had luck with the Hollister Deep Convex since the larger adhesive cover my belly button and the incision so it doesn’t adhere well. So now I am using a flat wafer and a small amount of ring barrier which so far has held for three days. Also barrier film seems to cause problems with the adhesive so am staying away from unless I develop skin problems. I use a stealth belt which seems to help keep the bag and wafer in place though I don’t sleep with it but I’d i use it right after changing wafer it seems to help it adhere better.
Re: Traveling
Why do many recommend the two piece bag?BillGK wrote: 2019-06-16 20:54:49 I have a colostomy. We drive cross country, often, and try to never fly. Whether it be on a cross country or cross town trip I carry a kit of extra pouches and disposal bags. I use nothing but disposable pouches. I keep one of these kits in each of our cars. I also carry a kit in my golf bag. If we are going someplace with other people, and they are driving, I carry an extra pouch and disposal bag in my pocket. Prepared like this, no worries.
Re: Traveling
Hi Howard,
I think many folks like the versatility of a two piece system. I have a colostomy, and I irrigate, so the two piece system allows me to change pouches without changing my flange and causing unnecessary skin issues. I wear a drainable pouch during waking hours. I remove that and then put on a closed mini pouch to sleep in (that's what I prefer to wear when sleeping), then in the morning, I remove the closed mini pouch and place an irrigation sleeve to irrigate with....After irrigation, I put on another drainable pouch for the rest of the day. I can do all of these changes without aggravating the skin. Others like the ability to change a full pouch during the day. There are many applicational uses for a two piece system, and folks choose them for a number of personal reasons. Hope that helps.
David
I think many folks like the versatility of a two piece system. I have a colostomy, and I irrigate, so the two piece system allows me to change pouches without changing my flange and causing unnecessary skin issues. I wear a drainable pouch during waking hours. I remove that and then put on a closed mini pouch to sleep in (that's what I prefer to wear when sleeping), then in the morning, I remove the closed mini pouch and place an irrigation sleeve to irrigate with....After irrigation, I put on another drainable pouch for the rest of the day. I can do all of these changes without aggravating the skin. Others like the ability to change a full pouch during the day. There are many applicational uses for a two piece system, and folks choose them for a number of personal reasons. Hope that helps.
David
stage III rectal CA 12/08 - colostomy 3/09
"Gatoring since 2010"
Psalms 91:2
"Gatoring since 2010"
Psalms 91:2
Re: Traveling
I prefer two piece also. My wafer can stay on the skin for up to a week, just changing bags as required. I can take the bag off to clean when needed. And since I also irrigate, same benefits as David. One bag usually lasts me a few days, since there is typically minimal output. I keep a spare bag in my back pocket, if I do encounter a large output while out traveling.
Ewings Sarcoma: 1996; G-tube: 1997; Cecostomy: 1998-99; Colostomy: ~2000; Irrigator: 2013-
Re: Traveling
I travel quite often - right now I am in Paris after being in London - I live in NY. I always take my extra supplies in my carry-on - actually on a short trip I carry-on a suitcase anyway. On a longer trip if I check a suitcase I keep all my supplies and meds with me.....
Ileostomy due to UC - 50 odd years
Re: Traveling
I pretty much do the same as Nickolas except I don't have a "blue card".
I used to use the Nexcare First Aid Tape but found it bulky to carry. I switched to COLOPLAST BRAVA ELASTIC BARRIER STRIPS as they are flat, easy to pack/carry and work very well. I still have Nexcare First Aid Tape that I sometimes use at home.
I used to use the Nexcare First Aid Tape but found it bulky to carry. I switched to COLOPLAST BRAVA ELASTIC BARRIER STRIPS as they are flat, easy to pack/carry and work very well. I still have Nexcare First Aid Tape that I sometimes use at home.
Re: Traveling
Hi Mara,
Hope you are enjoying Paris and taking your usual fantastic pictures.
Hope you are enjoying Paris and taking your usual fantastic pictures.
Re: Traveling
I'm using Coloplasts mio bags and the older style plates. I keep one full set and one extra bag in a doggie poop bag. I will bring two sets and one extra bag if I travel.
Re: Traveling
For everyday I just have a roll of pink tape and a Brava strip in my purse and that's it. For longer trips - for example, I went on a day trip to NYC over the weekend - I made up an emergency kit with enough supplies for a full wafer/pouch change. It all fits in a big Ziploc bag and then I put it in one of the Coloplast blue bags for a little camouflage.
For longer trips I take 2x the supplies I think I'll need and put half in my carry-on and half in my checked luggage. I figure then I'm covered if I lose my bag or my luggage is lost.
For longer trips I take 2x the supplies I think I'll need and put half in my carry-on and half in my checked luggage. I figure then I'm covered if I lose my bag or my luggage is lost.
Danica
Crohn's since age 6
Ileostomy 1993
Crohn's since age 6
Ileostomy 1993
Re: Traveling
I keep everything for a full change in my purse. I had to change my pouch while out the other day; that's the first time in years.
I store it in a cloth pencil pouch, the kind that fits into a binder. I saw some at Dollar Tree the other day. I've also used small cosmetic bags.
I store it in a cloth pencil pouch, the kind that fits into a binder. I saw some at Dollar Tree the other day. I've also used small cosmetic bags.
Lee
I am not my disease.
I am not my disease.
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- Posts: 21
- Joined: 2019-08-10 00:41:33
Re: Traveling
Ileostomy here. I have a small men’s cross-shoulder bag that I keep enough supplies in to do 2 full changes, plus a few extra things (Imodium, hydralyte, scissors, sanitising wipes etc.). I take it basically everywhere except to walk the dog or down the shops. If I travel I just add bags and seals to cover the number of days I’ll be away, plus a few extras. If I fly I just remove the scissors and keep it with me as carry-on. For a really long trip, some of the bags go in my checked luggage. Haven’t had an issue so far!